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Chris, for me "on" is when the meds are effective (not when they are supposed to be, just when they work) and off is all the other times. Also for Jules, I don't know if this is the same, and maybe someone else on the list can help answer this or comment on it. I have severe cramps and contractions of limbs every time I go off meds. My "normal" posture, when off, is right foot curled and twisted, where I walk on the side of the foot. Rt hand curls and lays under my collarbone, and then both are likely to start shaking - my hand resembles someone strumming a guitar very quickly. Less common, my torso will cramp - this was actually one of the first symptoms I had that something was wrong - I get a severe pain in my left (usually) ribcage, and dont breath for 2 to 3 min. It usually stops just before I loose consciousness, and may continue for 15 min or longer just allowing me enough air to "enjoy" the experience. I have felt internal trembles occasionally, but they are rare for me. The cramps were originally diagnosed as a muscle set which had healed wrong. Adding to the joy of trying to figure out what is caused by what is the fact that I have broken my ribs at least 15 different times from 1 to 5 ribs at a time (Willy Nelson knew what he was saying with Momma's don't let your babies grow up to be cowboys"), and broken too many other bones to keep track. So when I have pain spasms, I rarely know what the original cause was. I guess what I am asking is, I have read several "experts" who say pd isn't painful. Are they correct, and is this caused by past injuries, or can pd be contributing to the daily pain? And can I look forward to more of the same? Most of the pain began when I turned 30. At the ripe old age of 40 now, I am beginning to get just a tad depressed when I think about my health. I am going to shut up and send this before I think about it anymore, but if anyone has any suggestions, I would love to hear them on or off list. bob "tex"