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hi all At 10:33 1999/08/25 EDT, lorrie wrote: >Janet, >Thanks for the reply. >Gerry's current meds: >2 sinemet 25-100 reg every 3 hours when awake....ususally 3 to 5 times a day >1/2 clozaril 25mg 1xday at night >florinef 0.1 mg for low blood pressure (which has been very good lately) >timoptic and xalatan for glaucoma >many other meds have been tried....mirapax. eldepril, but side effects have >been too much >other medical conditions: >orthostatic hypotension, glaucoma, enlarged prostate but basically >incontinent now so no meds for it, sleep apnea >Drs: >Switched from Neurologist to movement disorder specialist about a year ago. >The movement Dr is extremely well known for PD, recommended to us by the >National Parkinsons Foundation. (Dr Phillip Ballard in Seattle). >Gerry's primary physician is a well respected endocronologist. >Although only diagnosed 7 years ago, Gerry (an MD too, but Psychiatry type) >has known he has PD for about 15yrs. >Does this help paint the picture? >Lorrie >BTW, Kudos for the list. I discovered it last October and found many >useful things through the archives and from members at that time. >Thanks for the service. hi lorrie first i will re-direct your kudos to barb patterson our list-mom and founder [and i'll add a 'me-too' to them!] thanks for the added info the 15 year time span adds a little more sense to the picture the sinemet doseage seems 'lumpy' if i may use a medical term usually after this length of time on/off movement fluctuations and end-of-dose drop off would be obvious although pd is different in everyone, etc etc fine-tuning the sinemet dosage is usually the remedy i.e. smaller but more frequent doses in order to provide a smoother supply of levodopa does gerry notice or exhibit any on/off periods? i.e. poverty of movement from too little dopamine and dyskinesia from too much ? the one year period seems to stand out in your messages the start of the rapid decline the change of doctors at the same time doesn't sound like just a coincidence so now i will don my sherlock holmes chapeau: why did gerry change doctors? was that when meds were changed? if so, why were they changed and what was he taking before that? have his cognitive abilities changed in the same period? were there any other changes at that time in his lifestyle, his diet, supplements, etc? i agree with margie that all of this needs to be discussed in detail with his current doctor [and with gerry, too, he might have his own opinions] if you aren't satisfied with the answers there then i think it's in gerry's best interest to seek further medical opinions janet janet paterson 52 now / 41 dx / 37 onset po box 171, almonte, ontario, canada, K0A 1A0 a new voice: http://www.geocities.com/SoHo/Village/6263/ [log in to unmask]