 |
 |
Ida, Erika, Kees, et al.... A note to whichever one of ya who said that (paraphrasing) At first the PWP having a pallidotomy will feel euphoric, then feel not so good, and then will feel sort of better (errrr... maybe I should have done a direct quote?). Speaking ONLY from my own experience, I had a unilateral (one side only-type) pallidotomy on Oct. 24, 1994, with outstanding success. During the ensuing five years my RIGHT side has been functioning at about 98% of normal. Mind you, the PD is now developing on my primary side - the left side - externally and internally, but had I not had the pallidotomy when I did, I'd be troubled by having BOTH hands and legs being dysfunctional as the left-side-symptoms creep up on me. I might add, the internal symptoms I've developed - breathing, speaking, eyes pulling outward, concentration (as in lack-of) etc.., started about a year post-pallidotomy and since I've had PD for almost 25 years, and am familiar with many of the nuances of this hateful disease, I do NOT attribute these symptoms to the pallidotomy. They're classified under the category of "With PD, SH*T HAPPENS," as far as I'm concerned.<sigh> Sooooo... in my opinion, one should expect the best prior to having a pallidotomy, and hopefully that's what they'll get! Barb Mallut [log in to unmask] -----Original Message----- From: John Lawley <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Sunday, August 22, 1999 6:51 PM Subject: Re: Kees Paap PD, but mail in Dutch >-----Original Message----- >From: Ida & Andre Kamphuis <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Monday, August 23, 1999 7:45 AM >Subject: Kees Paap PD, but mail in Dutch > > >>Listmembers, >>I lost the new e-mail adress of Kees Paap. I worrie a bit about him, >>because immediately after his pallidotomy he wrote he was fine and from >>than he was silent. So I'll ask him. >> >>Kees, je stilte maakt mij ongerust. Als je dit bericht leest, laat dan even >>weten hoe het met je gaat. Als het niet zo goed gaat, kan het je misschien >>een beetje geruststellen dat het na een pallidotomy in eerste instantie >>vaak fantastisch gaat, waarna er een tijd komt dat het allemaal tegenvalt, >>maar dat het uiteindelijk toch meestal weer meevalt. Die tweede fase zou >>vaak een stuk beter te verdragen zijn, als je van te voren op deze >>mogelijkheid gewezen zou zijn. Maar ik hoop dat ik er naast zit en dat het >>gewoon goed gaat. >>Ida >> >>-------------------------------------------------------------- >>Vriendelijke Groeten / Kind regards, >> >>Ida Kamphuis mailto: [log in to unmask] >> >Somewhat "rusty" translation by Erika. >Please allow me to translate, as the message may be useful to others as >well. > >Kees, Your silence causes me concern. Should you read this message please >let us know how you are doing. >If all is not so well, it might reassure you that after a pallidotomy at >first things go fantastic, after which a period follows when it seems all >disappointing, but in the end it turns out to be not so bad after all. >The second fase of this sequence would often be a lot easier to handle if >one has been alerted to this possibility in advance. But I hope that I am >mistaken and that all is going well.Ida. > >I hope no-one minds me popping in with this translation. I love the way this >web is used to help, support and care, as well as inform. Good on ya, Ida! >Love to Janet and all, from Erika.