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Has anyone had success?  At what point in the progression of PD?


>From: Hilary Blue <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange <[log in to unmask]>
>To: [log in to unmask]
>Subject: semi PD - eligiblity for disablilty
>Date: Sun, 22 Aug 1999 08:56:28 -0400
>
>Hi folks ,
>dennis's interesting and informative description of problems pwps  had in
>getting parking permits because of the on/off nature of our symptoms
>reminds
>me of an interesting encounter I had yesterday. We become so involved (or
>at
>least I do,) with our own problems sometimes, that we do not realize that
>others may experience similar  difficulties.
>Yesterday I ran into an acquaintance I had not seen for a few weeks. It
>turns
>out tha she also ahd an interview with an SSA doctor on Friday, also  to
>qualify for disability pension. But, she says, the problem is, 'the doctor
>never sees me at my worst'.
>HEr problem - she is severely allergic to certain chemicals, which can
>cause
>her to become totally dysfunctional. THese include common household
>chemicals
>like air-fresheners, and hairspray. But when she keeps clear of them, she
>is
>fine. Catch a whiff of hairspray etc, and she is helpless.
>
>SHe said it wasn't until she was going to another floor in a building
>accompanied by her doctor. and they entered an elevator where someone had
>used
>one of the guilty chemicals - and the doctor saw for himself her immediate
>extreme reaction - that  he even considered her complaint as serious. BUt
>then, when he tried to help her fill in the forms for SSI, tere was no
>appropriate category  under which to file her complaint. Ergo , it doinst
>exist, ie there is nothing wrong with her?
>
>so, I guess, we are not alone in our struggle for recognition of our
>special
>p roblems. Maybe if we joined hands with those others who share some of our
>problems, we could solve them together, just a little more quickly?
>
>Hilary Blue


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