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I have often wondered how many of us write to our governments stating our wishes and needs. I realize that we are scattered over the world, but if we continued asking ( politely demanding ) help in research eventually something will happen. In the US the Udall bill is not even funded [ in spite of my efforts- :-) ]. We can talk about the difficulties of PWP among ourselves forever, we know what it is like ( caregiver ). I know we are scattered though out the US ( most of us ) but by writing and writing we will get attention. It will take a while though. My legislator has written me several time to tell me what he has done to try to help. The senators only answer ( eventually ), but surely they must know we vote. My children write, my friends write. I can't say we have made a dent yet. But a concerted effort to get political action will help or at least not hurt. I have no idea how to organize this group into political activists so I am asking that you write. Nita Nita