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Nita, I wrote one to Sen Herb Kohl (Wisconsin Democrat). I just got back a letter where he thanks me for sharing my thoughts. He supports sufficient funding for bio-medical research at the NIH. I paraphrase: "We must maintain a strong national commitment to bio-medical research." Congress appropriated $15.6 billion for NIH for fiscal year 1999, 12 billion more than the 1998 funding level. As they consider future funding, he will keep my views in mind and he will continue to work within our current tight budget constraints to fund research efforts at the highest level possible. It may be just a form letter for this type of inquiry, but I did hear back at least. Terry ---------- > From: Nita Andres <[log in to unmask]> > To: [log in to unmask] > Subject: action > Date: Tuesday, August 24, 1999 9:53 AM > > I have often wondered how many of us write to our governments stating > our wishes and needs. I realize that we are scattered over the world, > but if we continued asking ( politely demanding ) help in research > eventually something will happen. In the US the Udall bill is not even > funded [ in spite of my efforts- :-) ]. We can talk about the > difficulties of PWP among ourselves forever, we know what it is like ( > caregiver ). I know we are scattered though out the US ( most of us ) > but by writing and writing we will get attention. It will take a while > though. My legislator has written me several time to tell me what he has > done to try to help. The senators only answer ( eventually ), but > surely they must know we vote. My children write, my friends write. I > can't say we have made a dent yet. But a concerted effort to get > political action will help or at least not hurt. > > I have no idea how to organize this group into political activists so I > am asking that you write. > > Nita > > Nita