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Hilary Blue wrote: > THAT DOESNT MEAN WE HAVE TO ACCEPT IT. > > I fight against the wheel chair - I will NOT use a walker - till I absolutely > have to,, and I fight against passivity. > You , of all people, Janet, are a fighter. Maybe there are those whom > biochemical passivity has rendered immobile physically and mentally. . > Personally, I have been rejectting that imagw of myself for 2 6 yuears, and > I'll go on doing it for as long as possible > - with a little help from my friends. It's easy to say "fight on!", and "I won't give in to mechanical aids", but choices are limited for many people. During the past week Barba has fallen and hurt her head twice and one hospitalization. The rollator is now a must wherever she goes, and our neuro absolutely insists on it. Our primary suggested we look in a recent Consumer Report evaluation of bicycle helmets to protect the precious cargo we carry on our heads. It is not a matter of giving in to the disease, it becomes a matter of survival. Then there is the matter of convincing you congressional representatives and senators to vote your way by constant writing and harassing until they put up for their vote on the Udall Bill. Have you noticed that the great majority of the PAN fighters are the younger patients who still have the energy, perseverance, and stamina to pursue that road. Of course, we older people with the bulk of more debilitating PD do some some calling and contacting. If I can play with the alphabet on this keyboard to discuss with you or entertain you, I should certainly be able to write to people on the Hill. Even though Barbara has a companion a couple of days a week, the role of CG is still a full time job more exhausting than any gainful employment I've ever had. By the end of the day, I am washed out. I do not know if today was a typical day by going to the weekly CG meeting while the PWP attends execercise class, then running home to take Barbara to her primary for a follow up on her falls, and then quickly run to my cardiologist for a follow up on my circulatory and diabetical (not diabolical) problems. We got back in time to have dinner which is being served between 4 and 6. When I came up after a little socializing with other residents, Barbara was taking a snooze: she often likes to take a little nap before going to bed! And I spend the rest of my energy at this wonderful instrument of communication. T'is also time to quit. Good night, ladies and germs!