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PDKIDS
The American Parkinson Disease Association Young Parkinson's Information &
Referral Center (http://members.aol.com/apdaypd) has created
PDKIDS, an email discussion list for children who are living in a family
affected by
Parkinson's Disease.
Parkinson's disease is a family affair. Even young children are affected
when someone they love is not functioning in their "normal" ways. PDKIDS is a
forum for children (through teenage years) who live with or love someone with
Parkinson's disease. Through this Internet program, PDKIDS offers kids a
place to get to know others like themselves who are in similar circumstances
and have similar concerns. By joining PDKIDS, children can "talk" to each
other in confidence (to the extent that an Internet list will allow) and
discuss anything they wish about how PD affects them.
How it works: This is a free program for any child 18 years or younger. To
join, kids send an email to
[log in to unmask]
Subscriber names and personal email addresses will be
automatically deleted from email headers posted to the list to ensure
confidentiality. Using the "reply" button to respond to a member's posted
email will go directly to the PDKIDS list, not to an individual member.
There will be a "light adult presence" on the list, serving to provide
technical guidance and to ensure that the conversation remains constructive.
This "presence" will be provided by Susan Reese, RN, LCSW, National
Coordinator of the APDA Young Parkinson's Information & Referral Center and
by Simon Coles, co-owner of the list,and himself an adult PD kid.
Membership in PDKIDS is for children only. Adults wishing to discuss
Parkinson's Disease in general may join one of the lists at
http://www.coles.org.uk/community.htm
To reach the list owners, send an email to
[log in to unmask]
A special thank you to our friend Simon Coles and the Adreinne Coles Memorial
Trust for partnering with the APDA Young Parkinson's Information & Referral
Center on this project.
Susan Reese, RN, LCSW
National Coordinator
American Parkinson Disease Association
Young PD I&R Center
1/800-223-9776
