Hi new members---there are lots of good resources available for learning
about PD. Here's a partial list to give you a start:
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* janet paterson's website--general information and many good links
http://www.geocities.com/SoHo/Village/6263/
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* Art Hirsch's website--lots of good links.
http://www.fortunecity.com/meltingpot/farley/817/blynx.html
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* The easy way to find a MOVEMENT DISORDER SPECIALIST is to dial
1-888-400-2732. This toll free number will ring in the American Parkinson
Disease Association Information & Referral Center.
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*National Family Caregivers Association: (301)942 6430 or 1 -800 -896 -3650
Memberships are $20. yr. for individuals and includes such things as:
Take Care", an informative mewsletter with advice and resources
CG-to-CG Peer Support Network, to help CG members find a friend in similar
circumstances
"The Resourceful Caregiver", a resource guide filled with information other
advocacy and awareness -raising activities
Costs are in US currency, and Canada residents are asked to include an
extra $12. for postage
A call to the 800# will get you a useful FREE packet of information.
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* Addresses for national PD organizations in the USA:
American Parkinson Disease Assn.(APDA)
60 Bay St.,Staten Island, NY 10301
(800) 223-2732
http://www.apdaparkinson.com/ (includes directory of support groups)
Fax: (718) 981-4399
E-mail: [log in to unmask]
and: APDA Chicago Area Chapter (new address)
Glenbrook Medical Office Bldg. South, Suite 127
2050 Pfingsten Rd., Glenview, IL 60025
(847)724-7087
E-mail: cac [log in to unmask]
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National Parkinson Fndtn.,Inc.
1501 N.W. Ninth Ave. , Bob Hope Road, Miami,FL 33136-1494
(800) 327-4545 e-mail: [log in to unmask] Fax:
305 548-4403
http://www.parkinson.org
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Parkinson's Action Network - PAN
Website: http://www.sonic.net/~pan/
Address: 818 Suite C College Avenue
Santa Rosa, CA 95404
Phone: (707) 544-1994 or (800) 850-4726 Fax: (707) 544-236
E-mail: [log in to unmask]
OR
Capitol area office:
1001 Pennsylvania Avenue, Suite 850 North, Washington, DC 20004
Phone: (202) 628-2079 Fax: (202) 737-4242
E-mail: [log in to unmask]
A nationwide advocacy organization
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Parkinson's Disease Foundation - PDF
Website: http://www.pdf.org
Address: 710 West 168th St. Third floor - New York, NY 10032-9982
Phone: 212-923-4700 or 800-457-6676 Fax: 212-923-4778
E-mail: [log in to unmask]
OR
Midwest office:
833 West Washington Blvd., Chicago, IL 60607
Phone: 312-733-1893
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* National Institute of Health Research News Parkinson's Disease
http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
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* Awakenings
http://www.parkinsonsdisease.com/ (open forum)
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* The neuro website at harvard is an excellent resource:
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/pdmain.html#mainmenu
a psychosocial article is there along with an algorithm on managing pd
and some excerpts from the young parkinson's handbook and
a caregiver's handbook
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Parkinson's Institute
Website: http://www.parkinsonsinstitute.org/index.html
Address: 1170 Morse Avenue, Sunnyvale, CA 94089
Phone: 408-734-2800 or 800-655-2273 (Canada) or 800-786-2978 (US) Fax:
408-734-8522
E-mail: [log in to unmask]
An independent, not-for-profit organization conducting patient care and
research activities in the
neurological specialty area of movement disorders.
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United Parkinson's Foundation
NOW MERGED WITH THE PARKINSON DISEASE FNDTN.
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* National Assn. for Incontinence, PO Box 8310, Spartanburg,SC 29305-8310
1-800-252-BLADDER, OR see their website at Http://www.nafc.org
--ask for their resource guide ,listing products and services for
incontinence
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Also, you may have joined after I posted the reminder about the sublist for
caregivers: here's how to join it, if you are not already a member :
any CG who wishes to join should send to:
[log in to unmask]
this command --in body of post:--no signature, please:
SUBscribe CARE your full name
The request will be forwarded to the co-owners of the list, who will add
you, and send you further instructions.
Questions? Ask me--- Camilla Flintermann, [log in to unmask]
or---Jeff Jones, [log in to unmask]
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If possible, you should see a movement disorder specialist, who is fully
informed about PD, as not all family doctors and general neurologists are.
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Specific posts about a great variety of subjects are available in the list
archive, at this URL:
http://james.parkinsons.org.uk/search.htm
That spot is the "starting point". That is the site you should
"Bookmark" to return to whenever you want to resume "mining".
Click on that spot and you will arrive at the Parkinsn archive (bold
heading) As you read this page and scroll down you will come to a
bold heading "Links".
Click on Here's a link directly to the search screen.
You will arrive at the Full Text Search Screen page.
Place your cursor in the box, click, then type in whatever text you
wish to "mine" (search for) and then click on the Search Button.
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Hope this helps you get started!
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
