 |
 |
Dear Sharon: YES YES YES Have recently begun a trial on ReQuip which resulted in exactly what you described-the swelling, flushing, etc. Plus nausea and insomnia. For ME, this particular agonist's side-effects are agony-almost worse than the "unwanted companion" itself. Carole H. --- Sharon <[log in to unmask]> wrote: > Brian, > > I'm having a looong night/morning and perhaps am a > bit groggy (could > that be intoxicated from lack of sleep??), but would > you please explain > again your comment ---- > > "The exposure if you start with an agonist on > diagnosis, > would be in the region of 60-100 Pergolide > years. ...... but at > least my exposure is only 15 > Pergolide years." > > I did not have a positive response to Mirapex or > Requip and am still > wanting to gather as much info as possible about > those drugs. > > I am wondering if any one else had a similar > experience as I had on two > different occasions- where I flushed all over my > body and felt quite > bad and then found on my left chest and left > shoulder blade what I > describe as spread-out finger prints of what looks > like varicose veins. > The same thing happened again on my right should > blade. And the > fingerprints remain as my questions remain. I spent > a very long time > coping with swollen ankles and legs, beet red feet > and pain that almost > made you not want to walk, in addition to the awful > "instant sleep" > problems. > > I feel it is important that I give my physicians as > much detailed info > as possible about my experiences so he/she may be > quicker to question > and investigate someone elses reactions to a > specific drug, as it may > save them some unnecessary pain or discomfort. > > While we all would love for our physicians to have > "the answers", I feel > it is reasonable for us to remember that they are > learning also about > our unwanted companion. I've taken a bit too long > to trust my > instincts--and I know better, because I have good > instincts,--but I no > longer think, well it's just the way it is, the PD > is making me feel > like this...NO, I listen to my body and I question, > and I participate! > I've started keeping a journal about us--Me and > PD--and it helps with > the questions and it helps the doctor who is working > hard to help > me.....it's a TEAM effort, and thanks to all the > special people on this > list it is a BIG TEAM EFFORT!! > > Guess I woke up!!!! > > Good morning to you Hilray! I'm going to bed before > I have to get up! > > Have a wonderful Monday Holiday everyone! > > Sharon Eissele > __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com