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Since people are writing in about mirapex and requip....here's my input.....I take mirapex and have terribly swollen feet/ankles at times and sleeplessness all the time at night and fatigue......the little I know about requip is that at my very first PD support meeting at the local hospital, a woman brought her husband in to the room in a wheelchair....when time for questions and answers, she raised her hand told the speaker (a neurologist)........that after three days on requip, her husband could not walk...his legs just stopped working...he had an mri and various tests, been to several other neuros, called the drug company and no one could tell them why he could not walk anymore.....this has been about 8 or 9 months ago and he's still in the chair...Joan H. ----- Original Message ----- From: Sharon <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, September 06, 1999 5:45 AM Subject: Re: Mirapex = Requip? > Brian, > > I'm having a looong night/morning and perhaps am a bit groggy (could > that be intoxicated from lack of sleep??), but would you please explain > again your comment ---- > > "The exposure if you start with an agonist on diagnosis, > would be in the region of 60-100 Pergolide years. ...... but at > least my exposure is only 15 Pergolide years." > > I did not have a positive response to Mirapex or Requip and am still > wanting to gather as much info as possible about those drugs. > > I am wondering if any one else had a similar experience as I had on two > different occasions- where I flushed all over my body and felt quite > bad and then found on my left chest and left shoulder blade what I > describe as spread-out finger prints of what looks like varicose veins. > The same thing happened again on my right should blade. And the > fingerprints remain as my questions remain. I spent a very long time > coping with swollen ankles and legs, beet red feet and pain that almost > made you not want to walk, in addition to the awful "instant sleep" > problems. > > I feel it is important that I give my physicians as much detailed info > as possible about my experiences so he/she may be quicker to question > and investigate someone elses reactions to a specific drug, as it may > save them some unnecessary pain or discomfort. > > While we all would love for our physicians to have "the answers", I feel > it is reasonable for us to remember that they are learning also about > our unwanted companion. I've taken a bit too long to trust my > instincts--and I know better, because I have good instincts,--but I no > longer think, well it's just the way it is, the PD is making me feel > like this...NO, I listen to my body and I question, and I participate! > I've started keeping a journal about us--Me and PD--and it helps with > the questions and it helps the doctor who is working hard to help > me.....it's a TEAM effort, and thanks to all the special people on this > list it is a BIG TEAM EFFORT!! > > Guess I woke up!!!! > > Good morning to you Hilray! I'm going to bed before I have to get up! > > Have a wonderful Monday Holiday everyone! > > Sharon Eissele >