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Re the post from PAN. I did call Kathy -we have one week to get this done. I have found it unbelievably hard to get good friends to write. Well I am going to push harder, all I can do. They seem to be unaware of what PD is and that we are the politicians boss. If they don't do what we want at least we can vote. ( wish we were the tobacco lobby ). Senator Kyl is only one, all of you have a couple. Mine aren't so hot either.. However those letters must be in by the end of next week. Write. I find it unbelievable that people do not or do not know how to take part in this government. I guess we really have the government we deserve. My dentist was more willing than most. Nice man and he will write. I even am surprised to find that my friends expect David to get better. Live and learn. I needed to vent and you are on the receiving end. Thanks, Nita Camilla Flintermann wrote: > Here's Kelly's answer to what some asked me about after I sent a post to > this list urging folks to write about PD $$$$$$$ Apparently the problem > lies with Sen. Kyl (AZ) not with the wording of my post.. > ******** > >Date: Fri, 10 Sep 1999 10:18:58 -0700 (PDT) > >From: Kelly Abbett <[log in to unmask]> > >Subject: Re: Appropriate or fund ? > >To: Camilla Flintermann <[log in to unmask]>, [log in to unmask] > >Cc: [log in to unmask], [log in to unmask] > >MIME-version: 1.0 > >Original-recipient: rfc822;[log in to unmask] > > > >Hello Camilla, and sorry for taking so long to respond. I use this account > >just for list mail and do not check it every day. > > Yes; the money called for in the Udall Act has not been fully > >appropriated. "Appropriated" is really a synonym for "funded" - ie, the $ > >amount has been specified in legislation, but the $ must be > >actually allotted to fund the research through each year's appropriations > >bills. > > > >Senator Kyl's explanation for the lack of federal investment in PDresearch > >is rather curious - the NIH annually receives more PD research proposals > >than it can fund. > > I hope that explanation is intelligible. Please contact me or PAN > >(800-850-4726) with any further questions. > > > >Kelly > >------------------ > >Kelly Jean Abbett > >Program Associate > >BASS and HOWES > >[log in to unmask] > >tel: 202-530-2900 > >fax: 202-530-2901 > > > > > >--- Camilla Flintermann <[log in to unmask]> wrote: > >> Dear Kelly-- You may heve seen the message I sent > >> to the PD list, using > >> your sample "script". In the introduction I said : > >> > >> "Friends -- Nita Andres has made it very easy for us > >> to know where to put > >> pressure for full funding of the Udall Bill, which > >> was SUPPOSED to provide > >> money for PD research. As you know, it was passed by > >> Congress, but the > >> money which was "approved" has not yet been > >> "appropriated", so can't be > >> spent !" > >> *** > >> > >> I've rec'd the following comment/question from BERNARD BARBER, and > >>thought you could clarify, as your script refers to "appropriations". > >> > >> Date: Fri, 03 Sep 1999 20:41:02 -0700 > >> From: "Bernard Barber,Ph.D." <[log in to unmask]> > >> Subject: Fwd: Meeting with AZ Sentor Kyl > >> > >> >Date: Fri, 03 Sep 1999 20:31:44 -0700 > >> >To: [log in to unmask] > >> >From: "Bernard Barber,Ph.D." <[log in to unmask]> > >> >Subject: Meeting with AZ Sentor Kyl > >> >Cc: [log in to unmask] > >> > > >> >Hi Camilla, > >> > > >> >Perhaps you can help me with my confusion. > >> > > >> >A group of Pan folks met with our Senator Kyl to express our concern > >>re:the Udall bill being appropriately funded for Parkinson research. It > >>is my impression, and that of other members that he told us the monies > >>will be appropriated for such research, and that the problem was that > >>research > proposals had not been submitted. > >> >Now, your note suggests that we write to get the money appropriated. > >>Perhaps you can clarify this for me. I am Cc Maryhelen, as she was also > >>present, and felt that was what Kyl had said. > >> >Thanks, Bernie