 |
 |
Hi Sarah, We are so sorry to hear about your grandmother. Parkinson's can be such a devastating illness. If your grandmother is as bad as you say, may I suggest that you get in touch with your local/county hospice program. They can provide help at home for your grandmother and your grandfather with volunteers who do so many wonderful things, and help your grandfather care for your grandmother. The benefits are numerous, including allowing your grandmother to stay home and your family to be so glad they were able to allow her to do so. No matter what is said, there are no better caregivers than the people who love you. Hospice will provide equipment, pay for medication related to a terminal diagnosis, and provide support and direction. In order for a person to be admitted to a hospice program, the attending physician has to indicate that the person is appropriate to care provided by the program. Essentially, the person must have a life limiting illness which, from your description, fits your grandmother. We wish you & your family only good thoughts and prayers . Sandy Huegel Sarah Doubt wrote: > Hello everyone, > > I don't write very often, but I follow along everyday. But now I have a > question. > > When I first logged into this group I told the story about my > grandmother. She has PD and is not very good at all. This weekend I > got verification of that. Her VON came in and did an assessment of her. > She said that she has never seen anyone as bad as my grandmother, EVER! > That's pretty scary. What does that mean? I wasn't there so I was not > able to ask questions. She is still living at home and my grandfather > is her main caregiver but he's no spring chicken. There is a 6 month to > 1year wait for a nursing home in her area. We don't see the point > really, as she may not last that long (my grandmother is 81). There is > the chance in an emergency that she could get into a nursing home > immediately but that could be anywhere and the family couldn't deal with > her being far away. We also don't want her to go to a nursing home > because we think she won't last long once she goes there. My > grandfather takes such loving care of her at home. > > I guess my question is, what happens now? If she's the worst there has > ever been, what should I expect? > > Thanks for any help you can give.... > > Sarah Doubt > [log in to unmask] > > "...a rose by any other word would smell as sweet..." > William Shakespeare