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hi all At 20:40 1999/09/18 -0700, linda wrote: >Sherry; >Well, I too would like to put in my two cents (oh what the heck let's go >for the gusto and make it three cents!). I was officially diagnosed >August 1994 and like so many, had symptoms for some years prior to dx. >I was 45 at the time of dx. > >There are a lot of similarities with us and of course being the >"Designer Disease" we are also very uniquely individual in symptoms, >progress etc. This list has played a very important part in my >attitude, education and decision making. > >The most important benefit of this list for me has been education!!!! >The saying that knowledge is power, in this case is very appropriate!! >I have learned so much and with that learning it has been a opening door >to better relationship with my doctors. I continue to education them! >I agree with Barbara Patterson when she said the most knowledgeable >would live the longest! The other very very important thing is how to >take your meds, not just which meds, as important as that is, you could >be taking the right meds but not in the dosage or intervals needed and >therefore not get the results you should. Barb Mullett as far as I can >say..was and is very instrumental in improving my quality of life >through her help in how to take meds. I won't say this exactly as she >did nor with the wonderful humor she expresses (aw shucks she is saying) >but, she explained that we are all like a chemical soup so to speak. >Each one of us different in our chemical makeup. At the time, I was >taking two Sinemet 25/100's 3 times per day and experiencing a lot of on >and offs. But she explained that it is important to experiment how much >and how often you take your meds. I ended up taking 1 every two hours >and found a more constant response to my meds. Thanks Barb. My meds >have changed but not my methods. Thanks again. As was mentioned by >Art, I am one of those many that have responded to you that are not one >of the regulars! I am a fairly regular reader of these posts, but, have >not interacted much. What all of you don't know is how much I speak to >others about you and how much I appreciate everyone on this list. God >Bless You All! > >I would also like to emphasize the attitude/outlook issue. Boy, what a >difference it has made in my life! Back in June I celebrated my 50th >birthday and the exciting thing is I look at it as the beginning of the >second half of my life!!!! Yes, life is different than I would have >expected but, hey it isn't all that bad either!!! I have learned >wonderful lessons and am improving who I am. I am not sure that would >have happened if things had been different. Life is the >focus..........None of us are guaranteed another breath but, thank God I >am still breathing....It is funny how different our perspective is when >we see our frailties. All humans are handicapped to some degree, just >some of us are more obvious than others. Life is truly what we make of >it. Don't get me wrong, I get depressed more than I like, I don't know >how I am going to feel from day to day but.....It still ain't all that >bad, thanks to God, my friends and family and of course my this list >family!!!!!!!!!!!. > >One more thing, I would like to mention something about doctors before I >end this post. Remember that they are only human, they provide a service >that you pay for and therefore you should be satisfied with whom you >spend your money. Interview them, make a list of questions, tell them >what you expect from them and ask if they are willing and/or able to >fulfill your needs. This is your life and you deserve to have excellent >care (not perfect, but excellent). If not satisfied try try again. >Blessings to all of you >Linda >[log in to unmask] linda, what a pleasure it is to hear from you and what a great example you set! them's the best three cents i've seen in a long time! [er... is that canadian or us?] janet janet paterson 52 now / 41 dx / 37 onset 613 256 8340 po box 171 almonte ontario canada K0A 1A0 a new voice: <http://www.geocities.com/SoHo/Village/6263/> <[log in to unmask]>