I imagine she's worried about her career, or maybe
she's in denial, BUT I wonder if she realizes the
damage she does to PD awareness/education whenever she
implies that Parkinson's is nothing but a damned
nuisance? I also wonder if anybody has asked her this?
Carole H.
--- Dennis Greene <[log in to unmask]> wrote:
> From the interview:
>
> > RENO: Some days it does, some days it doesn't.
> [Points to her hands.]
> > This is the primary symptom. Some days I get
> stiff, but I think that's
> > from lack of exercise in this [right} hand,
> because of the shaking of this
> > hand.
> >
> > Q: Is that frustrating?
> >
> > RENO: No. I just think of what it must be like
> for people who have
> > difficulties, who stutter, who have cancer. And
> you think, Gosh, I'm
> > fortunate.
>
> Wouldn't it be nice if high profile PWP still
> fortunate enough to be
> exhibiting early or early middle stage PD would
> preface statements such as
> the above with something on the lines of "At the
> stage I've reached I can
> still think ..." or even, in the case above, have
> added - 'who have more
> advanced PD' - between 'stutter' and 'cancer'. As
> it is Ms Reno has
> portrayed PD as something less disabling than a
> stutter, something which is
> not even a 'difficulty'. God only knows how many
> months of profile and
> awareness raising she has undone. I would think
> that the PD associations
> in the US would be justified in protesting Ms Reno's
> comments in as loud a
> voice as they have the ability to use.
>
> Actually, a more productive approach would probably
> be for the associations
> to approach high profile PWP who take it upon
> themselves to comment
> misleadingly on PD and request that they appraise
> themselves of the
> realities of the situation before pronouncing on it.
>
> (Note: I am aware that later in the interview Ms
> Reno acknowledges that she
> will get worse and does use the words 'so far I
> think i'm fortunate'. Sadly
> they are used after the damage is done).
>
> Dennis.
> +++++++++++++++++++++++++++
> Dennis Greene 49/dx 37/ onset 32
> There's nothing wrong with me that a cure for PD
> won't fix!
> email - [log in to unmask]
> Website - http://members.networx.net.au/~dennisg/
> +++++++++++++++++++++++++++
>
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