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Paul: Thank you for your response. I didn't know about all the vitamins and protein etc. I am having trouble finding a neuro who is current thinking about this disease. I have HMO insurance and live in a smaller town where the only neuro I can get is about ninety himself. He's really very nice when he's awake! I guess I will just keep getting my info from people like you who share my concerns. Thanks for the hope, I feel much better. Sherry