 |
 |
Dear Barb: In addition to what you have found on the Internet, it may behoove your friend to call the Society for Progressive Supranuclear Palsy. They are located at Johns Hopkins in Baltimore (800) 457-4777. They have a quarterly newsletter which I receive and it is very informative. Also, they have listing for support groups for PSP. Best of luck to your friend and her husband! Sincerely, Bonnie Cunningham NPF Date: Mon, 13 Sep 1999 00:20:35 -0700 From: Barb_MSN <[log in to unmask]> Subject: Resembles PD Dear List-family I gotta phone call from a member of my PD support group asking me for info on (phonetic spelling) "Supernouckular Palsy," as her hubby's PD diagnosis was changed to that PD act-alike yesterday. In doing a Web search for that disease, I entered it spelled in every way I could think of and the darn programs kept sending me back a "Huh WHAT" message <OYE! Spelling never was my best point> I tried at various medical sites figuring I'd get lucky at LEAST once, but got the same results. (Don't ya just HATE when your computer lAUGHS at ya?) <grin> Sooooo... the heck with them medical Web sites: Can anyone CORRECTLY spell "super (supra? supre?) noucklear Palsy?" THANKS!! Barb Mallut [log in to unmask]