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Re: janet's comments re: "going public"-Although an incredibly difficult proposition while you're trying to salvage a career-you know it is illegal to discriminate against the "handicapped"-you know it happens all the time-I have found that telling people you have PD up front has lifted a terrible burden. I wasn't fooling anyone. It had become increasing obvious SOMETHING was wrong and I found most people were empathetic. The other issue is suspicions that you're drunk or high when they notice your lack of coordination, tremors, etc.-which can also be death to a career. Carole H. --- janet paterson <[log in to unmask]> wrote: > hi all > > At 19:35 1999/09/19 -0700, susan trout wrote to me: > >Hi Janet, To your question what types of research I > am interested in, > >I am interested in biomedical research and in human > drug trials. > >I thought I'd share a little about myself. I am a > board member of > >PAR (Patients for Animal Research, through WABR, > Washington Association > >for Biomedical Research) which I became involved > with through involvenent > >with iiFAR (Incurrably Ill For Animal Research). I > got to iiFAR through > >dogs. I'm a breeder-exhibitor of Boston Terriers. > One day while staffing > >a table at a large animal exhibit at a mall I met > Patty Woods (iiFAR & > >PAR) who introduced me to the world of benefits we > have from biomedical > >research, both for us and for our animals. > > > > I am a political activist, an elected PCO, and I > have spent many years > >talking to our state legislators and giving > testimony before committees, > >but not in the last 3 because of poor voice control > and the whole body > >shaking to the point my friends started kidding > about me and performing > >their renditions. LOL they have been so funny! > > > >Does anyone have any suggestions to contain the > trembling that increases > >when under stress? I become so nervous now days > that I shake literally > >from head to toes. Hands and legs are the worst. > What about voice control? > >Pitch, volume, shakiness in the voice, tripping > over tongue or tongue not > >moving with my thoughts... > > > >Legislative committee meeting rooms tend to be > elongated slots with 3 > >raceways to get up to the tables & microphones to > speak. Please tell me > >how others deal with having to move about in close > confines without > >tripping, stumbling, and generally making a very > poor first impression; > >all this I can manage to do before opening my > mouth. Opening my mouth > >these days seems to remove all doubts in the > legislators minds that > >I am on something, or generally incompetent. > > > >Wish me luck, I'm going Tuesday to protest the work > of a commission the > >governor appointed. They are taking public > comments at the commission > >meeting, and I'll be darned if I'm not going to be > heard. I'll need to > >be standing, with notes in hand, and speaking into > a microphone. Any > >suggestions anyone has to improve the presentation > would be appreciated. > > > > Susan Trout <[log in to unmask]> > > > hi susan > > i'm sorry to be so late in getting back to you! > i hope your presentation went okay yesterday! > > my personal approach, were i to have to do the same > thing, > especially if i knew that my symptoms were going to > be obvious, > would be to preface my remarks with a disclosure > about my pd > > the 'psychosocial' article mentioned in the > pienet/words section > of my website describes the pros and cons of 'going > public' > > i'm going to take a leap and post your message to > the list > where you'll find lots of support and advice > [even though it may be belated!! :-( ] > > yikes, we have a political activist > and an accomplished legislative speaker in our > midst!!! > > also, susan, in re research, the links pages on my > website > have references to current trials and pubmed and > other 'links to links' > > > janet > > janet paterson > 52 now / 41 dx / 37 onset > 613 256 8340 po box 171 almonte ontario canada K0A > 1A0 > a new voice: > <http://www.geocities.com/SoHo/Village/6263/> > <[log in to unmask]> > __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com