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Hello Ivan and Everyone - Ivan, your efforts and enthusiasm are truly admirable. The witness list is closed as Senator Snowe's office said. It sounds like you have developed good relationships with your Senators' offices, and that is one of the most helpful ways to make a difference in the struggle to ensure Parkinson's disease research is allotted the federal funding needed to find better treatments and a cure. If you can urge your Senators to speak about the hearing with their colleagues and encourage all Labor-HHS Subcommittee Members to attend the hearing, more Senators will have the opportunity to be educated by what will be a powerful and exciting hearing. --- Ivan M Suzman <[log in to unmask]> wrote: > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] > :-) > Portland, Maine land of lighthouses 60 > deg. F :-) > ******************************************************************** > Hello again, friends and cyber-family, > > We seem so HESITANT to comment, and this worries > me. Are we > afraid of something? > I am now wondering if I am too daring, or if it was > not really > OK to have suggested that I testify. > > My gut tells me it was really perfectly OK, that we > need NEW faces to > add > to those already well-known. > > So I guess there is a question of power and control > issues. > Should grassroots PWP's be heard, or remain > relatively invisible? > > As the AIDS movement always has said, "Silence = > Death." > > I noticed that Hilary Blue published, a few days > ago, a LIST of 8 to 10 > PWP's and CG's. starting with Joan Snyder, whom she > felt should be > HEARD > and SEEN at the microphone in the Appropriations > hearing on Tuesday. > > I have received several off-line messages asking > me to testify, but so > far, > no on-line messages have appeared for all of us to > consider. > > > I will be talking with Senator Snowe's staff again > tomorrow > > I would be very disappointed if no voices from the > grassroots of P.I.E.N. are heard in Washington. We > have > great power if we can just get the door to open to > us. > > What I am saying is - it doesn't HAVE to be me. > But it REALLY seems strange to see NO comments > tonight. > > > Ivan > :-) ? > __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com