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Those pwp who aren't testifying before the Senate still CAN be heard. HOW? Telephone your senator/representative's office and ask to speak to the staff person responsible for health/medical legislation. The US Capitol Switchboard is 202-224-3121 If that person isn't available, ask to leave a message on their messaging machine. They will call back if you leave your name, phone # and that you are a constituent of the sen/rep. Tell your name, if you are a pwp or friend/family of pwp and that since it's time for voting on the appropriations for the FY2000 Labor/HHS bill you wanted to remind sen/rep that you are depending on his/her support of increased NIH funding specifically for Parkinson's focused research as was promised in the Morris K. Udall Bill that congress approved in November 1997. If you are asked any question you don't feel qualified to answer.....refer the staffer to the Parkinson's Action Network at 800-850-4726 or call yourself and give them the staffer's question and they will contact that office. Do this for you, do it for me, do it for those pwp who cann't do it for themselves. Jeanette Fuhr 48/47/44? Date: Wednesday, September 22, 1999 8:38 AM > > Hilary Blue wrote: > > > > > > This is fantastic news! > > PWPs testifying before the Senate! > > . WOW.! > > And Michsel J Fox one of them > > .He is a good spokesman. > > Everybody knwos who he is. > > But is he neccessarily the best > > representative? NO , I am not saying not to have him > > - he is a wonderful choice. > > But I'm just wonderiong who the others will be. > The names that come to my mind are -- > Joan Snyder > Ivan Suzman, > Bob "Tex" ARmintrout , > Barbara Mallut,. > > Brig and Gerrie Haines, > Ted and Carol Melser, > Gina Cass > and many many others- > people who right now > are suffering the effects of PD - > not the rich and the famous > who have all the amenities > to make things as comfortable as possible, > but ... > those whose lives are being shattered - > losing their homes, > their marriages, > their jobs, > their children to foster care, > not getting adequate care in the home, > fighting for SSI, that is rightfully theirs, > fighting the airports just to travel in a wheelchair, > fighting the hospitals for the treatment they deserve - > > > all because of this disease. .... > > Hilary Blue (50, 26, 17) >