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Dear friends, A question: has anyone asked Senator Specter, or any other Senator, ( Sen. Harkin is the Minority Ranking Member) if my printed Testimony will be mentioned at all, at the microphone? Sen Specter's Appropriations tel no: 202-224-7216 (Bettilou Taylor) Sen. Harkin's Appropriations tel no.: 202-224-7288 (Ellen Murray) I still do not know if it will be mentioned, and I have phone calls and e-mail asking that specific question. Mr Specter or whoever has the gavel, and noone else, could do this. 's ABOUT MY TESTIMONY: I am told that it has been included in the packet that the sub-Committee Members received, along with that of the 5 attending witnesses. I hope that what I said helps. I was asked by Senator Snowe to give a DESCRIPTION of the daily tasks and symptpms I have to cope with every day. It was felt by the Committee that it would be extremely unusual and valuable to hear or read such] a detailed description of PERSONAL medical details, from a person who actually has PD (or young-onset PD) . It is called "Ivan's testimony" on PIEN. I stayed up typing and e-mailing and phoning and editing non-stop since last Friday, including TWO ENTIRE NIGHTS (Saturday and Sunday) until 4 AM. What a marathon. So please forgive me if I am a little bit "in the dark." Ivan Suzman :-) On Tue, 28 Sep 1999 08:51:55 -0400 Camilla Flintermann <[log in to unmask]> writes: >Finally got a reply to my question---take note: > > >>To: >>From: Camilla Flintermann <[log in to unmask]> >>Subject: RE: Senate hearing >>Cc: >>Bcc: >>X-Attachments: >> >>>Date: Tue, 28 Sep 1999 08:36:20 -0400 >>>From: [log in to unmask] >>>Subject: RE: Senate hearing >>>To: [log in to unmask] >>>MIME-version: 1.0 >>>Original-recipient: rfc822;[log in to unmask] >>> >>>Although we are not having live coverage of the Senate Hearing on >>>Parkinson's Disease, we will air it later tonight after Congress >adjourns. >>>You can obtain scheduling information the following ways... >>> >>>1. Call our Schedule Hotline at (202)-628-2205 after 7:00pm ET >tonight. >>> >>>2. Visit our schedule website at >http://www.c-span.org/guide/schedule/ >>> >>>3. You can also subscribe to our e-mail schedule service at >>>http://www.c-span.org/guide/alert2.htm. >>> >>> >>> >>>-----Original Message----- >>>From: Camilla Flintermann [mailto:[log in to unmask]] >>>Sent: Monday, September 27, 1999 7:45 PM >>>To: [log in to unmask] >>>Subject: Senate hearing >>> >>> >>>On Tues. 9/28 you list at 9:30 on C-SPAN 2 a "Senate session". I >need to >>>know if this is the hearing before the Labor Appropriations >Subcommittee on >>>funding for Parkinsons disease, set up by Sen. Specter ? >>> >>>Camilla Flintermann, CG for Peter 81/70/55 >>>Oxford, Ohio >>>http://www.newcountry.nu/pd/members/camilla/one.htm >>><[log in to unmask]> >>> >>> "Ask me about the CARE list for >>> Caregivers of Parkinsonians ! " >>> >>> >> >> > > > > Camilla Flintermann, ><[log in to unmask]> > > http://www.newcountry.nu/pd/members/camilla/one.htm > > " Knowing when to insist, and when to let be, > is,perhaps, a lifetime learning experience ." > --Mary McCurry ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************