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Dear readers of PIEN. I have just spoken with a source on the staff of the Senate Appropriations Office. She told me that there will be a UDALL vote TOMORROW MORNING on the floor of the Senate,. and that we should CALL our Senators from all 50 States TONIGHT, OR TOMORROW MORNING, AND URGE THEM TO VOTE FOR FULL FUNDING OF THE UDALL LAW ($100 MILLINON ANNUALLY). My Testimony was included in the packets distributed this morning to each of the 15 Senators on the SubCommittee. The Testimony is part of the official Hearing Record of the Sub- Committee, but is NOT in the Congressional Record as far,she said. The Hearing Record has to be printed, and this can take time, maybe months. My source is trying to find out about this. Table of Contents follows. > >The Daily Challenges of Young-Onset >Parkinson's Disease: > >Testimony submitted to the United States Senate >Appropriations Sub- Committee on Health, Human Services and Labor: >Hearing on Parkinson's Disease. >September, 28, 1999 >by >Ivan M. Suzman, >Portland, >Maine > >TABLE OF CONTENTS: > >1. Acknowledgments >1. Introducing Myself >2. Early Career >3. Y.O.P.D. Appears >4. Daily Routine >4. Personal Care Attendant Help >5. Problems With Protein and Dehydration >5. Bladder and Bowel >6. Hypothermia >6. Mobility >7. Medications Cause Emergencies >8. Education Needed >9. Impoverishment >9. Underpaid Medical Attendants and Fluctuating Health >10. A Whole Night's Work For Only $9!! >11. No Clinics in Maine, New Hampshire Or Vermont? >12. Dental Health Issues >12. Inconsistent Medical Opinions >13. An Uncertain Outlook for PWP's >14. My Plea To The Committee: Please Fund the Udall Law Fully! >15. Coping and Hoping > 1 >---------------------------------------------------------------------- >