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One of our senators ( Gramn ) is against. Senator Hutchison is non committal , so
I call her office and write ( fax ) frequently. I don't know if that is lobbying
or not. I surely do it. Nita

Camilla Flintermann wrote:

> Will-- I think the idea of a bunch of questions focused on PD $$$$$ is
> good--perhaps the national PD orgs could manage to get this going?  The
> questions would be the same.,I expect, in every Congressional district--but
> the answers would differ a lot !  Our own Rep. Boehner has always refused
> to support Udall etc on the grounds that he disapproves of
> "earmarking"---others would express their support, and this would give
> folks some idea of where they stand.  If "big business" can lobby, I don't
> see why we can't continue to do so !
>
> William Harshaw wrote :
> >
> >Remember that politics is merely the art and craft of deciding policy.   I
> >don't think P.I.E.N. should endorse specific candidates, but we could have a
> >few litmus test questions for all candidates, for  example:
> >1)    What are the public policy implications of neurodegenerative diseases
> >becoming the second-largest killer, surpassing cancer, by the year 2040?
> >
> >2)    How would you allocate funding amongst the neurodegenerative diseases?
> >
> >3)    What are your views on the use of human foetal cells and porcine cells
> >in research and clinical trials, and ulitimately in regular surgical
> >therapy?
> >
> >Q2 is a real minefield.  For example, should you fnd research to cure MS or
> >PD?
> >
> >MS usually strikes in the second and third decades.  Finding the causes and
> >developing cures would mean that those who othrwise have MS - likely about
> >three quarters of a million people would have:
> >i)    career earnings on which they would pay income tax
> >ii)    lifetime contribtions to social programs
> >iii)    a normal family life, with children, &c
> >
> >PD, on the other hand, usually strikes in the sixth or seventh decades when
> >the estimated milion and a quarter victims are:
> >i)    past peak earning power, hence not a growing source of tax revenue
> >ii)    are consmers rather than contributors to social programs
> >
> >Carefully framed questions will elicit responses which will enable list
> >members to mae an informed decision
> >
>
> Camilla Flintermann, CG for Peter 81/70/55
> Oxford, Ohio
> http://www.newcountry.nu/pd/members/camilla/one.htm
> <[log in to unmask]>
>
>                         "Ask me about the CARE list for
>                         Caregivers of Parkinsonians ! "