Dear Listmembers,
It was my great pleasure to have seen this video at the Conference in
Sydney last month. As a health professional, I was deeply affected by
the concerns raised--those of a woman with PD, hospitalized, and
attended by health professionals with no understanding of her needs.
I encourage all listmembers to find a way to get your physicians,
nurses, pharmacists, dietitians, social workers, and other health
professioanls to view this video. Perhaps support groups could offer to
provide inservice training to local hospitals, nursing homes, and home
health agencies. I do not believe anyone seeing it can possibly come
away without understanding and empathy for those hospitalized Parkinson
patients in their care.
Joy Graham has done a great service to all those with PD by producing
this videotape; it crosses all borders of nationality and is just as
important for Europeans, Asians, North Americans, and those of other
countries as it is for Australian health professionals.
Best regards,
Kathrynne
Bob & Joy Graham wrote:
>
> Dear List members,
>
> At the recent 5th MultiDisciplinary Conference on PD in Sydney, I was
> honoured to be included in the program to present my educational video on
> PD called "Lost Voices".
>
> List members Dr Mitchell Mills and Kathrynne Holden gave me the courage
> (and much of the wisdom) to write the video, which was first presented as
> an oral "dramatic presentation" to health professionals at a course on PD
> where I was asked to present on "Potential Minefields in Parkinson's
> Disease".
>
> The third time I performed it I begged for it to be videod, so that I did
> not have to perform it live again!
>
> I am very pleased that the health professionals at the Conference were both
> moved by the video and excited by its potential. Staff at the Concord PD
> Clinic (Sydney) told me that it will be compulsory viewing for all who work
> there. Similarly, two nutritionists who were at the Conference agreed it
> was a very important educational tool.
>
> Our own Kathrynne Holden is "quoted" in the text, and was one of those who
> viewed the video at the Conference.
>
> Having tested it in the market - so to speak - I am telling the List
> members that it is available for purchase. Please be aware that the video
> has been designed for health professionals and is definitely not a video
> for the newly diagnosed.
>
> The Australian version costs $30 (includes postage) and it is available
> from the Parkinson's Association of WA.
>
> In USA format, the video costs AUSTRALIAN $47 (includes postage).
>
> I must make it clear that personally I MAKE NO MONEY FROM SALES, but $5
> does go to our Western Australian Parkinson's Association and $5 to Curtin
> University, Perth, who produced the video.
>
> (I should add, that our Association is working closely with the School of
> Nursing at Curtin Univ. on the second course on PD for health
> professionals, to be offered in early 2000.)
>
> Anyone who would like to purchase a copy of the video (and please, it IS
> copyrighted, so do not make copies) can contact our Office Coordinator,
> Jodie Noonan on PH: +61 89381 8699 Fax +61 89382 1149; or by email
> [log in to unmask]
>
> You can pay for it by your credit card (from the USA or Australia) or by
> cheque if you are from Australia (Cheques payable to "Parkinson's
> Association of WA").
>
> I am preparing an order form for our Assoc homepage and will get that done ASAP.
> In the meantime, you can send your details via email or to the address below.
>
> Details to
> Jodie Noonan
> Parkinson's Association of WA
> 320 Rokeby Rd
> Subiaco WA 6008
> Australia
>
> Following is a write up with more detail.
>
> Sincerely
>
> JOY Graham for the
> Parkinson's Association of WA
>
> .........................................
>
> Video: "Lost Voices: Hospitalisation - Potential Minefields in Parkinson's
> Disease" Author/Performer: Mrs Joy Graham RN BA. Produced 1998
>
> This video is a unique educational tool, suitable for both undergraduate
> and post graduate teaching in Parkinson's Disease.
>
> It was developed collaboratively by the School of Nursing, Professional and
> Continuing Education at Curtin University of Technology (Western Australia)
> and the Parkinson's Association of WA. The video comes with a set of
> questions for discussion following the viewing, an article by Dr Mitchell
> Mills ("Safe Hospitalisation for Parkinson's Patients") and a
> Hospitalisation Form.
>
> When health professionals understand Parkinson's Disease, they have the
> ability to create positive outcomes for the person with Parkinson's who is
> hospitalised. When that knowledge is missing, the hospital can become a
> potential minefield for a person with PD.
>
> The video is a documentary/drama during which the audience is taken through
> a hospital "minefield" as experienced by a woman in her early fifties who
> has late-stage and difficult-to-manage Parkinson's Disease. She has been
> poorly managed and is hospitalised with psychosis and hallucinations due to
> Parkinson's medication.
>
> We follow the patient from her initial admission, through a series of
> mis-adventures, to her eventual discharge ten months later. The story of
> her hospital stay is realistic, moving, challenging and confronting.
>
> Overheads which are interspersed throughout the story speak as an
> all-knowing observer might, or as a living text book. Since stunned
> silence is the usual audience response to the video, the accompanying set
> of questions provided help to promote discussion and to encourage further
> research and training.
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
Author: "Eat well, stay well with Parkinson's disease"
"Parkinson's disease: assessing and managing unique nutrition needs"
http://www.nutritionucanlivewith.com/
