 |
 |
Just by calling our senators and representatives ( and me nagging the list ) . Sometimes I would like to think of something else. Maybe Michael Fox's testimony, which has been run in the Houston area over and over will help. Now we need an Elizabeth Taylor or some one to hold benefits. Nita Bent Willow wrote: > WHH wrote: > > > >I also liked the one that goes approxinately "And if we can just get a > focus > >on it I really think we can get this done and we'll be outta your way." > > My husband, Jamie, opted to go to work at 12 noon today because he suffered > one of those familiar 'bad nights' that PD folks sometimes have. After I > got my messages off the list at 8 a.m. I told him that his choice to go to > work later was fortuitous because C-Span was carrying the Senate hearings > on PD funding. After flipping on the TV we sat together and watched the > proceedings - often, with tears in our eyes. MJF was magnificent. His > moving testimony, as well as his courage, put a very human face on Young > Onset Parkinson's disease. It has become evident to us how important it is > to have a celebrity at the forefront of a 'cause.' His face has been on > both local and national news here in the greater Detroit area, and it is > his name that has gotten the attention of the press. Just as Rock Hudson > personalized the fight of AIDS sufferers, so Michael J. Fox has brought to > the attention of the nation the fact that Parkinson's Disease can afflict > the young, healthy, and talented. > > Many on this list (and off of it) have worked diligently to make government > recognize the horrible debilitating nature of this disease. I applaud all > of you and offer my sincere and heart felt thanks for your hard work and > perseverance. > ----- > God bless > Mary Ann Ryan (CG Jamie 59/20)