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Margie, Thanks for the warm welcome. At 12:46 AM 10/07/1999 EDT, you wrote: >Hi, Tom - > >Welcome to the list. My husband was diagnosed at age 37. You'll find many >young onset PWP (people with Parkinson's) here on the list, so you've come to >the right place. > >You didn't say where you live or whether you are seeing a movement disorder >specialist rather than a general neurologist. If you have access to one, I'd >strongly recommend it. If you're not sure where the nearest movement >disorder specialist is, someone on the list is sure to be able to help. I live in Rochester (upstate) New York. I am seeing a doctor at Strong Memorial Hospital, University of Rochester, Neuro MIND Center, Parkinson's Diseaes Center. So, many different names for the same place. > >Now for my unsolicited, non-medical opinion: The dosages of Sinemet sound >very heavy for someone so newly diagnosed. It makes me wonder if the shaking >you describe is truly PD tremor or if it could be dyskinesia caused by too >much medication. Yes, I and my Doc. would agree that I have increased to a high dosage of Sinemet quicker than we would have liked to. I did not start taking Sinemet right away. Only when my tremor reach the point where it got it my way of working, did I take Sinemet. And, I started at half a pill 3 times a day. When I am late or miss a dosage my tremor is very noticable and but pain is sharp. >You'll find we're fairly free with advice here on the list, >and of course you're free to ignore it, and should always consider the >source. However, if you hear the same thing from several list members, it >might be worth thinking about. The pain in your buttocks could also be from >dystonia, another side effect of medication. > >The other bit of advice I have is to recommend that you look for a >young-onset support group in your area. If you don't live near such a >meeting, this list is an excellent source of support. In fact, it's a >gigantic support group of about 1800 people. Glad you could join us. > >Margie Swindler cg for Dick, 54/17 > Enjoy! [log in to unmask]