 |
 |
Donna, Welcome to the elite club. Believe me when I say that I am truly delighted for you. You mentioned a couple of things here that I have also been through. The first was the reduction of medicine. Now that it has been over three years since my surgery I have quit taking Sinemet all together. All I take for Parkinson's is 1 mg of Mirapex twice a day. Maybe you will be able to reduce the sinemet in the future. I still feel like I am improving. The other thing you mentioned is that psychological feeling that I could do anything but then remembering that I hadn't done that for years. like golf, sew, drive the car. I don't know what I expected but I wanted to reenter the world at the same level that I left it behind. It is difficult to explain. Anyway I am so happy for you. There still are miracles! > This letter is long overdue. I underwent DBS in the STN and June 23rd in >Kansas City.. If to say a to markedly improvement is an understatement. I >recently went from a three-month checkup and was told l was a poster child >for Parkinson's disease. My symptoms I now have absolutely no tremor, and no >rigidity. My only bothersome symptom now is slowness of movement. This >surgery has absolutely saved my life . I live alone and was becoming >increasingly difficult to manage. > >I want to caution people however to have realistic expectations. I did not >have these. I truly expected to to be completely cured. I am an incureable >optimist. I thought I would be off all medicine and this nightmare would be >over. Unfortunately I'm afraid this has not happened and psychologically >that > has been difficult. The programming is critical. And for people undergoing >this operation they will experience setbacks during the first months. >This >is entirely normal but very difficult to deal with. > > As for medicine, I am taking less. I was taking 25 /100 A permax 1 mg, > and a Requip .1 every two hours. Now I take 25/250 CR and 2 Requip every >four hours. > > I had my surgery than in Kansas City.. From what I understand, they >are the >only place Medicare that Medicare will pay. I had to pay about $6000 after >all was said and done. > >I will be happy to the answer any questions please write directly to me. I >will >answer but I may be slow. jjjane http://www.geocities.com/soho/village/6263/pienet/hithgang/hitjaner.html