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Dear members of the Parklist,

For some months now I have been following your postings and I thought it's
about time to introduce myself.
My name is Kris, I live in Belgium together with my husband Marcel, who was
confronted with Parkinson's disease at the age of 27.  We went through a lot
of problems. We had at that time two young children and while we were
building a house we received the bad news about Mr. Parkinson getting into
our lifes.  It was a nightmare!!!! The first 10 years Marcel was still able
to work with ups and downs. After that time he really had to stop working
because further deterioration and side -effects of the medication.  Problems
like stiffness, freezing, dyskinesias and terrible dyskinesias.  20 years
after the onset, Marcel was totally dependent on others for his routine
daily activities.  Quality of life had decreased to the lowest point
possible. In march 1996 our life changed, he received his first DBS,
unilateral right sided pallidal stimulation with initially a great success
with great improvement of most of the symptoms and dyskinesias.   Several
months later, however, severe dyskinesias developed on the left side and in
mutual unnderstanding with our neurologist Dr. Chris van der Linden, we
decided and go ahead with a second pallidal stimulation, however, without
much success. He continued with side effects and the medication did not work
sufficiently.  Meanwhile, the team in Ghent decided to switch to the STN
target in the summer of 1997.  As a volunteer working for the Young
Parkinson patient support group I saw PD patients on a weekly basis.  Most
of my job consists of supporting patients before, during and after surgery.
I am present in the operating room to help patients make them feel more
comfortable.   The results were really astonishing, so my husband could
choose to have an operation for the third time.  Three times, last time?
Absolutely, on june 6 1998, Marcel got his bilateral STN and life has
changed ever since than. He is totally releaved from all his symptoms and
side effects. Medication is reduced to one third of the pre-op medication.
Before surgery he was taken 23 pills a day!!!!
We live again like we lived before the Parkinson struck us: bicycling,
walking, working in the yard, making trips, visit restaurants and our social
life is flourishing.  I would recommend this surgery for everyone, if you
are a good candidate, don't even have any doubts about it.  De surgery is
reversible, which is very important for new future treatments.
I respect anybodies opinion, but the criticising Dr. Chris van der Linden is
not fair. He is a very good physician, very alert, not dogmatic, always open
for new ideas and concerned about his patients.  He is always available if
you need him and last but not least his knowledge and experience with
respect to Parkinson's disease and treatment, including off course DBS,  is
very wide.  He has been able to select the best candidates for the surgery
and therefore, I believe, excellent results.

Next time, I would like to inform you about my volunteer work as a patient
coordinator of the Parkinson support group in Belgium.

Warmest regards to all of you.

Kris and Marcel