Print

Print


Poor Chris has been dumped on by just about everybody for offering his
professional opinion - as distinct from our amateur opinions - on the
relative efficacy of pallidotomy, pallidal stimulation and STN stimulation

My views on the topic are conditioned by my experience.  When I had my
pallidotomy in Dec. '93, it was at the cutting edge - DBS had not yet been
invented.  My results were highly satisfactory as reported in the Lancet.

My DBS was pallidal stimulation even though I had, and still do, have an
electrode implanted in my STN.  It  was not hooked up because the test
stimulation of my STN produced severe dystonic contractions.

I had the first DBS in North America, and it continues to be spectaclarly
successful. Chris' experience is backed up with clinical studies.  My hat
goes off to him for tolerating us.

Bill
, -----Original Message-----at
From: George J. Lussier <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, October 03, 1999 6:26 PM
Subject: Re: surgery But NOT pallidotomy!!!!o


>Chris,
>   I think I've read most of your previous postings and I certainly have
>read those that followed and I must admit that I tire of people who are as
>opinionated as you. I would argue that you have the right to say what you
>would but enough is enough. You don't have all the answers.
>    When I had my 1st Pallidotomy back August '95 the List's wisdom was
that
>what ever decision I made was the correct one for me. The same was true
when
>I had my second in Sept '96. And I'm still going strong. If I had waited
any
>longer I would be dead,nuts or/and in a nursing home
>    I currently know two people scheduled for brain surgery; one for a DBS
>and the other for a Pallidotomy. The DBS involves a 50 year old man with a
>history of a failed Pallidotomy and a 20 year history of PD. I believe that
>he has made the correct decision for him. The second involves a 48ish woman
>who also has  20 years of PD. The reason she chose a Pallidotomy was in
part
>based on the fact that the average time on the operating room table was
>about an hour and 20 minutes and another hour plus for the MRI etc whereas
>the DBS
>takes, what 16-18 hours? And a weeks hospitalization. This woman is
terrifed
>of the MRI, the plastic drapping and the surgery in general. So what does
>she do? I think she has made the correct decision for her.
>   You haven't walked in my shoes so please be respectful.
>
>  george Lussier
>
>
>
>
>
>
>
>
>
>At 10:18 AM 9/30/99 +0200, you wrote:
>>> Ron,
>>>
>>> I can highly recommend neurosurgery for Parkinson's
>>
>>But NOT pallidotomy!!!!
>>
>>Chris
>>
>>
>I may not know much, but I know chicken shit from chicken salad.
>           LYNDON B. Johnson (about a speech by Richard M. Nixon)
>