Charlotte,
Hello and yes, I am with PAN. From now on, Kathy and I will be doing the
listserve postings for PAN and until people get familiar with my name I will
add a tag at the end that clarifies who I am. Thanks for your observation.
Regarding the funding being in jeopardy.....
Our advocacy posting relates to the fact that although Senator Arlen Specter
stated that he would add language specifying the $75 million for Parkinson's
focused research funding in the NIH budget as part of the Labor HHS Bill,
the fact of the matter is that he has NOT done so. Therefore, we need to
make a huge push to ensure that this funding promise becomes a reality.
I hope this makes the posting clearer and if you have any further questions,
please contact Kathy Hayes / PAN via email or by phone at 800-850-4726.
PS) Kathy asks that you post our Advocacy Action posting on the other PD
listserve that you know of....Thank You!!
~Mette~
-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of Charlotte Mancuso
Sent: Wednesday, October 06, 1999 5:33 PM
To: [log in to unmask]
Subject: Re: PARKINSON'S RESEARCH FUNDING IS IN JEOPARDY
To: Mette Adams <[log in to unmask]>:
Why do you say it's in jeopardy; please explain. Are you with PAN; how do
you know this.
Charlotte
---------------------------------------------
ADVOCATE CALL TO ACTION
ATTENTION PD COMMUNITY - PARKINSON'S RESEARCH FUNDING IS IN JEOPARDY!!
Immediate Action That You Can Take:
Call Chairman Specter, Labor HHS Senate Appropriations
Subcommittee @
202-224-4252
Call Chairman Porter, Labor HHS House Appropriations
Subcommittee @
202-225-4835
AND
Contact your own US Senators and Representatives.
Here are some talking points to bring up in your conversations:
· The battle to find a cure for Parkinson’s is winnable! But,
in order to do
so Congress must commit the
necessary resources.
· Parkinson’s disease will only be eradicated if the level of
funding for
research
matches the scientific need.
· The medical research community believes that Parkinson’s
disease can be
cured in
5 to 10 years.
· Currently the investment in focused Parkinson’s research is
insufficient!
It is insufficient
when compared with other, more visible diseases, and when
compared with the
potential for a cure. This is UNACCEPTABLE!
· We need $75 million for focused Parkinson’s research in the
FY2000 budget.
· Although the National Institutes of Health (NIH) funding for
FY2000 is
likely to be increased,
there is absolutely no mention of the $75 million dollars for
Parkinson's
focused research.
· At the September 28th Labor HHS Senate Appropriations
Subcommittee
Hearing,
Chairman Arlen Specter (R-PA) told Michael J. Fox, and the PD
Community,
that Congress could include $75 million more for Parkinson’s
research
if funding for the NIH increased by at least $1.3 billion. The
House Bill
includes a $1.3 billion
increase for the NIH, and the Senate Bill includes a $2 billion
increase for
the NIH.
The bills are currently in the process of moving through the
House and
Senate.
· Please be adamant in your request that the Labor HHS
Appropriations bill
specifies an
additional $75 million for Parkinson’s-focused research.
· Remind everyone you speak with that the $75 million for
Parkinson’s
research will help
ensure the cure to this debilitating disease.
For more information:
Check the Parkinson’s Action Network Website at:
www.parkinsonsaction.org
OR
call the Network at 800-850-4726 and ask for Kathy Hayes.
--------------------------------------
Charlotte Mancuso
***************************************************
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