Hi Arne---for more help from a dietician who specializes in PD, you can get
a free copy of a shortened version of Kathrynne Holden's book from the
National Parkinson Foundation. See instructions below. Also, does your
dietician suggest a 7-1 balance of food---7 grams carbohydrates to 1 gram
protein? This is often helpful.
********
Dear Friends---especially those living outside the continental USA-----
I was concerned that often our "overseas" (that is non-USA) members may
not have access so easily to PD publications and resources for information.
Thus, I inquired of the National PD Foundation (Miami, Florida) whether
their excellent pubs might be available to folks outside the USA and what
the costs would be.
Today I received the following response:
>Hello:
>Let's try it on the honor system.
>We will send the literature along with an invoice for the cost of
>shipping the package. The information as always is free.
>Please have these requests marked somewhere (Attention: M.
Alicea/Care)
>NPF
I would encourage listmembers to take advantage of this excellent resource.
I expect that pubs can be ordered by e-mail, so that not even a
long-distance phone call is required. The e-mail address is :
NPF Mailbox: <[log in to unmask]>
Don't forget to say "Attention: M. Alicea/Care"
For your information, a few of the topics covered by their pubs are:
"Patient Perspectives on Parkinsons" by Sid & Donna Dorros, "Practical
Pointers for Parkinsonians", "Nutrition Matters" (abridged from Kathrynne
Holden's book), "Fitness Counts"(exercises), "The Parkinson Handbook--a
Guide for Patients & Families", "Speaking Out"-( on speech & swallowing ),
"Medications"
If you are interested in a particular subject, include that in your e-mail
message and ask if they have something about it.
If some members try this, I would appreciate feedback as to how it worked,
and whether it was helpful!
*********
>I am 68 and got my PD-diagnos five years ago. Treatment with L-dopa
>(Madopar) and in addition during the last year Cabergoline (Cabaser) and
>Tolkapone (Tasmar).
>My problem is that protein in the food block the L-dopa uptake from
>the intestines and I have many and deep OFF-periods during the day. In fact
>main part of day-time.
>In an attempt to avoid these bad OFF-periods I minimized food
>containing proteins and instead the energy support was too low.
>I´ve lost 7 kilograms from 72 to 65 in three months.
>Now I have contact with a dietist , but the problem resists. I am still
>7 kilograms from my ordinary weight.
>Life is not good when the only thing You can do is sitting and waiting
>for ON !
>If anybody has some good advice please contact the list.
>Arne
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
