RESENDING WITHOUT THE DIGITAL GIBBERISH--SORRY! Hi all, Mixed news: the HHS bill passed the Senate last night with a $2 billion dollar increase, but without clear PD-targeting $$$s written in. However, there was sworn testimony at last Tuesday's hearing by NIH/NINDS chief, Fischbach, Spector, and Cochoran that PD will be more or less focused on, and that a better accounting of what is spent on PD by the NIH/NINDS will be done; additionally, the wording in the following paragraphs I took down over the phone, if they survive by the time it gets to President Clinton for signature, bears out that testimony and are very strong and encouraging. I wanted more: Actual $$$s spelled out for PD and the stem-cell language left in, but this is better than we've have had so far. Also with the $2Billion increase, they have no excuses to not fund PD as mandated in the Udall bill. One disturbing thing, though, is that I understand that the increase may not appear until early October 2000, the beginning of FY2001. I understand that it is not necessarily the case that grants could not be funded against this new increases during FY2000. Something called "ForwardFunding" I call it Fiscal Finagling in WDC, which is dizzying! The text on this is the last item. I know you're all weary from hearing this, but we've got to keep up the pressure on Congress for just a short while longer: Pretty please? For all of us? Who else will do it? [Scroll down for explanation.] From: Charlotte Mancuso <[log in to unmask]> To: Kathy <[log in to unmask]> Subject: NIH LANGUAGE FROM HHS BILL Date: Thu, 07 Oct 1999 10:15:39 -0700 As per Charity Bracey, Sen Feinstein's health aide, this is the language Sen. Spector put into the NIH portion of the HHS bill It's very nearly word-for-word (it was difficult to take it down perfectly over the phone, but it's very close). ------------------------------ The Committee encourages continuing [discovery into?] the the cause and treatment of Parkinson's Disease, and continues to seek intensified effort by NINDS to speed the development for effective therapies for this devastating disorder. Several recent findings demonstrate a strong scientific foundation for a major new [initiative?] in Parkinson's--focused research. The Committee also recognized the benefits of research breakthroughs in this area on other disorders within the Institute's scope. The Committee acknowledges the 1997 enactment of the Udall Parkinson's Research Act as a timely recognition of the scientific potential in this field, and a clear statement of intent by Congress to make Parkinson's Research a priority. The Committee is pleased that the Institute [funded?] 3 out of 10 authorized Udall Research Centers, but it is concerned these initial [?} do not fully reflect the Act's intent to expand Parkinson's focused research. The Committee encourages the Institute to provide sufficient funds to increase such initiatives in coordination with other relevant institutes, in order to carry out the full intent of the Act, and fully fund it's authorization for research focused on Parkinson's Disease. ------------------------------ Sounds good, but no $$$$ mentioned; hope this helps. Charlotte P.S. Called Specter again also. I thought MJFox's appearance on GAM was great; it's great to have someone like him speak up for us on all these network shows finally. Thanks to all, Charlotte -- ------------------------------------------------------- From: "Kathy Hayes" <[log in to unmask]> To: <[log in to unmask]> Subject: RE: NIH LANGUAGE FROM HHS BILL Date: Fri, 8 Oct 1999 09:11:25 -0700 Charlotte, Last night the Senate voted on their Labor-HHS bill. They did vote to increase the NIH budget by $2 billion. Now the House will take up the Labor-HHS bill and come up with their version. After the House votes it will go to conference and the House and Senate will reach a compromise which will then go to the President. So our focus now is the House and apparently we will have 5-10 working days to be contacting them. Monday is a holiday for them and they then have some sticky issues to discuss. So we could easily have all next week and into the following week to bug our Representatives. We will be sending out an action alert some time next week advising everyone what the next step is. Thanks for everything. We will also be closed on Monday so I'll talk to you later. Also the Regional Representative packets will be back from the printers on 15th or 18th. Thanks for your hard work. Kathy ------------------------------------------ To: [log in to unmask] Subject: POL: Washington Fax Date: Tue, 5 Oct 1999 09:52:02 -0500 > Senate L/HHS funding bill still surviving in floor debate > > House version may be a casualty of internal GOP politics > > Though it's taking longer than expected, Senate Republicans are confident > they can complete work later this week on legislation that would provide a > $2 billion boost to the National Institutes of Health (NIH). Getting the > bill through the Senate has gained added significance of late, since the > House version of the measure--which has a $1.35 billion increase for > NIH--is in deep trouble. {Yay!!] > > House Republican leaders reportedly are determined to take the FY 2000 > Labor, Health and Human Services, Education, and Related Agencies (L/HHS) > spending bill to the House floor for a vote. But their effort to shift more > money to the legislation--and thus give it a chance of passing--blew up > Thursday when GOP presidential candidate George W. Bush accused them of > trying to "balance their budget on the backs of the poor" with a plan to > delay government payouts to recipients of the Earned Income Tax Credit > (EITC). (see Washington Fax 10/1/99) > > The EITC provision, approved Thursday by the House Appropriations > Committee, would bring $8.7 billion to the bill. More importantly, it is > the linchpin in the House GOP strategy to produce L/HHS legislation that > has enough funds to assure passage on the House floor but does not eat into > Social Security revenues. However, Bush's comments quickly transformed the > EITC offset from merely controversial to a political poison pill. > > A Republican staffer predicted that the EITC language could end up being > the "family planning amendment of FY 2000," a reference to divisive > language that stymied work on the FY 1999 bill. But as of Monday, sources > said, Republican leaders had not come up with a way to plug the $8.7 > billion hole that would be created should the EITC provision be stripped. > > Given the size of the federal budget surplus, FY 2000 money woes are > really, in fact, political problems. Republicans have insisted on staying > within the spending limits established in the 1997 budget deal while also > staking their political fortunes on a pledge not to dip into the Social > Security portion of the surplus. As a result, they have engaged in a > variety of accounting maneuvers in an effort to claim they're sticking with > their program. > > The Senate has more flexibility in such a game, and that's why most > observers believe its version of the L/HHS bill is likely to win approval > on the Senate floor later this week. [ which it did]For example, Senate Appropriations > Committee Chairman Ted Stevens, R-AK, simply acted unilaterally last week > to shift several billion dollars to the L/HHS bill from the Defense > appropriations bill, with the proviso that the money would be replaced by > declaring a portion of Defense spending an "emergency." > > (Emergency money is not included in the tally that determines whether > budget limits have been breached and thus has become a popular device for > GOP appropriators.) > > But affecting a similar reallocation in the House would require the > approval of the full House Appropriations Committee, something that aides > say would be difficult or impossible to accomplish. > > One possible outcome reportedly under discussion among House and Senate > staff would be to skip the House floor altogether and work out a compromise > between the bill expected to be produced by the Senate and the L/HHS > measure approved by the House Appropriations Committee. Such a > "conferenced" bill could then be attached to another appropriations measure > and voted on by both bodies. > > The problem with that tactic, say those close to the discussions, is > Republicans are worried about any move that would lessen their influence in > the process. They are determined to send President Clinton individual > appropriations measures and then negotiate on a bill-by-bill, > issue-by-issue basis. Many Republicans view last year's budget > negotiations, in which most spending was rolled into a massive, omnibus > bill as a process that cedes most power to the president. > > The good news for science programs is despite the problems besetting the > L/HHS spending bill, no one is suggesting NIH will end up with anything > short of a substantial increase. Also, the L/HHS dilemma has prompted > Republicans to try to keep their headaches to a minimum by speeding up work > on other appropriations bills. > > That desire for action resulted in more money being added last week to > legislation that funds the National Science Foundation (NSF). The extra > cash makes it more likely the House, which produced a bill that cut NSF by > $34 million, would agree to the Senate mark for the agency, which provides > a $250 million increase--the equivalent of what President Clinton requested > in February. The architects of the House legislation have said they want to > give more money to NSF and would do so if extra funds were added to the > bill. > > As it now stands, for NIH the only potentially negative effect of the FY > 2000 accounting gymnastics is the Senate L/HHS bill would hold back $3 > billion in NIH funds until the end of the fiscal year. Section 215 of the > Senate legislation stipulates that $3 billion in NIH appropriations "shall > not be available for obligation until September 29, 2000." The House > measure contains no such language. > > If the Senate provision is retained in whatever L/HHS funding legislation > is finally enacted, it could mean grant awards normally doled out > throughout the last quarter of the fiscal year would not be paid until the > last day of the fourth quarter. It is not yet clear what the consequences > would be for NIH-funded investigators, beyond posing administrative > difficulties. > > On the positive side for NIH, the Senate bill employs an accounting > technique known as "forward funding" to double the amount available for > extramural construction, from $30 million to $60 million. The only catch is > half of that money would not be available until October 1, 2000, the > beginning of the 2001 fiscal year. However, advocates for increased > facilities funding say it still should be counted as a victory for FY 2000 > because research institutions would be able to apply for the money and NIH > could review applications in FY 2000, even though they would technically > not be able to send out any cash until October 1. > > The House bill contains $30 million for extramural facilities construction, > none of it forward funded. > > > A summary of the Senate L/HHS bill with links to bill and report language > is available through the Senate Web site at [ > http://www.senate.gov/~appropriations/hhsfull.htm]. -- Charlotte Mancuso *************************************************** For advocacy, medical, and other PD-related material, go to: http://www.onelist.com/subscribe/CurePD-NorCal