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Dear Jeff et al,

Here is a re-posting of the earlier information from the Hill (see text
below).  As of Friday 10/8/99, the status of the Appropriations Bill was as
follows; both the House and Senate Appropriations Bills are now going to
Conference. This Conference Committee consists of appointed members of both
the House and Senate. The Conference Committee will negotiate the
differences between the House and Senate Appropriations Bills and then refer
their version to both the House and Senate for a final vote -- then the bill
moves on to President Clinton. PAN will have a clearer timeline for voting,
advocacy, etc. by tomorrow -- so keep a look out for our next posting!!

Best wishes!

~Mette Adams~
PAN Staff

To Recap last week's events....

Advocacy Works!

Parkinson’s disease has taken another step toward securing the research
funding that will deliver the cure - and advocates from across the nation
played a crucial part.

The report accompanying fiscal year 2000 Labor-Health & Human
Services-Education (Labor/HHS)Appropriation bill passed by the Senate
Thursday evening contains the strongest language yet approved for
Parkinson’s research.  Senators Thad Cochran (R-MS), Paul Wellstone (D-MN),
Tom Harkin (D-IA) and Arlen Specter (R-PA) joined in a colloquy (an official
conversation included in the bill report) verifying that the overall budget
increase for NIH is sufficient to fund $75 million in additional Parkinson’s
research.  (Text of the colloquy below.)  While it doesn’t carry the force
of law, the colloquy states Congressional intent and provides clear
direction to the NIH.

The final version of the colloquy is the result of intense negotiations, and
would not be as strong as it is were it not for the publicity and awareness
raised about Parkinson’s and the research promise.  Even more important was
the flood of calls, faxes and emails which poured into the office of Senator
Arlen Specter, the Chairman of the Labor/HHS Appropriations Subcommittee.
All of that positive pressure convinced Senator Specter to agree to a much
stronger version of the colloquy - more supportive of Parkinson’s - than he
originally offered.

The tremendous energy and determination of the Parkinson’s advocacy
community was instrumental in achieving a big legislative victory - one sure
to translate into greater research funding in the fiscal year 2000 budget.

Three cheers to all of you for your efforts!!

-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of Jeff Carper
Sent: Sunday, October 10, 1999 2:40 PM
To: [log in to unmask]
Subject: Re: Congressional Timing


Does anyone have the reference name/number to use when writing
Congresspeople
about supporting the Udall Bill?