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As an MD and PWP who has had STN DBS surgery I wish Tom the best of luck and tell him to hang in there. It can take a while to get the adjustment right but it was worth it in the end. I am currrently able to drive which I could not do for 2 years prior to my surgery. I have normal reaction time and my neurologist says I test like someone with mild PD on decreased meds. Charli ----- Original Message ----- From: Sheila De Vine <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 16, 1999 8:24 AM Subject: Friend having Subthalamic DBS Thursday.... > I just wanted to write to all of you on the list to ask for your support and > prayers of a friend of mine who is undergoing a Subthalamic DBS in Sarasota, > Florida on Thursday, Oct. 21. > > He is the reason I joined the list some 5 years ago and have been on and off > the list throughout that time. > > To give you some background on who we are let me briefly explain. > > We traveled to Denver, Colorado and LA a few years back researching the > Fetal Tissue Implantation and I have been to Palm Springs visiting with a > group of Doctors who gave a days worth of information on PD and its current > research and results. Dr. Lieberman was one of the doctors who gave a > presentation and I visited with him for a short while before the > presentation. > > In addition, I am on the Advisory Board of a local Parkinson's clinic in > Minneapolis, Minnesota and I chair the Regional Outreach committee trying to > reach out to other communities hoping to increase the availability of PD > specific clinics or at least allow our clinic to train them and use our > facilitiy and programming expertise as well as the library and other > resources we have to offer. > > The gentleman having the surgery was my significant other for five years. I > took a very active role in helping him with his PD. We have since separated > as of January this past year. But, I feel very strongly about continuing to > help his family deal with this disease as well as continuing on with the > Board that I have worked with for two years now. > > He is not very able to work with the computer any longer and never cared to > get that involved himself with the clinic, the Board, the internet or even > watch documentaries on the subject. > > His sister has now taken over that role for him after my departure and I > work with and through her to pass along all this information that comes > across on the list as well as anything else that can contribute to his > health and well being. > > He is scheduled to have the surgery on Thursday, October 21 in Sarasota, FL > by a Dr. Schumacher at the Neurological Research Institute of Sarasota. > They are a NPF Center of Excellence. > > I am asking for your letters of support that I can send to his sister and > deliver to him. I am asking also for your prayers. > > I will keep you all informed of his surgery as well as his outcome as time > goes on. > > We all need to help each other....which is why we are on this PD List in the > first place. By praying for one another, supporting one another and sharing > our information, personal experiences and helping each other know what is > happening in the world of television, government, and the written > word.....we will all live a better life. > > I thank you all for what I know you will do for Tom and his family. > > Sheila De Vine > [log in to unmask]