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Dear list-readers, Hilary's right on the core issue: I do not have the resources to pay caregivers, since I receive $687/month. And the agencies underpay my helpers (it is now a rate of $7.30/hour, as of Octrober 1- a vast improvement over the $6.25 and even $5.25 I have had to contend with, but still low. I am very tired, but a lady has appeared to help me, at my door, who works with an African minister I have met. He is a leadaer amongAfricans here in Portland. I am trying to adjust to her impact. and I am fortunate that she heard about me. Her name is Jean. She will be staying here OVERNIGHT tonight, Monday, Tuesday and Wednesday. Tomorrow I hope to have had a little more rest to figure out what's next. If I ever go to a hospital due to exhaustion, I would go to Mercy Hospital in Portland. I have received two off-list letters I must answer. One is about assisted living, or not. The other asks me about resources for a young family with many parallels in the life of its younger-onset PWP to the elements of my own life story. Also , after waiting for one year, the Fact-Finding Conference of the Maine Human Rights Commission, to investigate FOUR categories of possible discrimination by the City of Portland lawyers against me, will take place 9:30 AM, location undecided so far. There is suddenly not enough time or rest in a day. I can also be reached by telephone. Ivan (:-@ (yawning) On Sun, 17 Oct 1999 16:16:28 -0500 Hilary Blue <[log in to unmask]> writes: >what exactly do you mean by hospital? >One night emergency ? >or long term? >I have to continue believing that there is some other solution. >I cant brelieve there is no other solution,. >How about a direct appeal to eg Bill Gates > Nathan Slewitt > Arlen Specter > The >Udall family > >Michael J Fox > >Some of these people have gone on record saying they want to do >something for >humnaity, or a segment thereof. Maybe they woud react to a plea from >an >individual member of that humanity, an individual who, at that, has >contributed far more than his fair share. >Hilary Blue. > > > > > > >Ivan M Suzman wrote: >> >> THANKS CLARE /CAMILLA + HILARY >> >> My neighbor drove me to Tom Allen's..I gave him my testimony. >> >> Got home, clock ticked by, caregiver nowhere to be seen. >> My 5 days per week CG, from 4-7 PM. + 8PM-midnight, + sleep-over >> was a no-show last night for the 2nd time. I learned at 10PM that >> this caregiver has QUIT without telling me. >> >> Woke up in deep off-state unable to walk at 330 AM. >> called Hilary 6 times..She was my anchor. >> >> This morning I called several church and synagogue people >> early this AM asking for emrgency CG coverage. No luck so far, >> >> Having dyskinesias and then exhaustion and then crashing >> into foot cramps with toes curling under. >> >> Hope that someone will appear to help. >> Nights alone too complicated. >> >> IVAN >> >> On Sun, 17 Oct 1999 10:59:36 EDT Clare Wilson <[log in to unmask]> >writes: >> >Hi Camilla. Good thinking ahead! I've faxed Ivan's testimony, in >a >> >cut-and- >> >pasted transcript to reduce its size, to the four chairman/ranking >> >congressmen last evening. None of the content was cut out, just >the >> >headers, erratic page numbers, etc. A cover letter was added to >each >> >individual describing its history, its purpose, and its >disappearance >> > >> >Today I'm emailing as long as I can sit here and type. >> > >> >Clare >> >> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >> Ivan Suzman 49/39/36 [log in to unmask] :-) >> Portland, Maine land of lighthouses 77 deg. F :-) >> >******************************************************************** ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 60 deg. F :-) ********************************************************************