Dear Senator Specter,
Young-Onset Parkinson's Disease is a MONSTER that is now destroying my
life. I
have gone from being a Professor of Anatomy at 32, to a shadow of my
younger self, living
on charity, with only $687.00 per month of SSDI now, at age 49.
Thank you especially for your efforts to maximize the intent and
funding of the Udall
Act, and particularly for the $75 million dollar colloquy with Senators
Cochran and Wellstone.
*** I hope that your staffers, Mark Lesch (sp?) and Betty Lou Taylor,
have showed your my
testimony. It took three days and two nights of painful, non-stop work to
prepare.
*** I was assured by Ms. Taylor that it was included in the official
packet placed
before you on September 28, at the hearing with Mr. Fox. I am too sick to
travel., and
noone has confirmed that you have seen it.
A retired neighbor drove me to Rep. Allen's home on Saturday. I gave
him an entire typescript.
Some of the best advocates we PWP's have are Pennsylvanians Gerri and
Brig Haines,
and Jim Cordy.
PLEASE push hard for us, as our futures are very doubtful, at best.
If you need any additional help or information, please feel free to
telephone me at
my house, 207 - 797 - 8488. My e-mail address is : [log in to unmask]
Yours Very Sincerely,
Ivan Suzman (onset and causes unknown, symptoms visible by age 35,
diagnosis at 39, currently 49)
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses 50 deg. F :-)
********************************************************************
_________________________________________________________________________
___________
On Wed, 20 Oct 1999 00:44:24 -0400 Michel Margosis <[log in to unmask]>
writes:
>> Subject: Re: Funding for Parkinson's Disease
>> Date: Tue, 19 Oct 1999 16:14:54 -0400
>> From: [log in to unmask] (Senator Specter)
>> To: [log in to unmask]
>>
>> Thank you for contacting my office through the internet.
>>
>> I am very concerned about the issues that are facing my
>constituents
>> of Pennsylvania. Please continue to keep me apprised of your
>views
>> and concerns.
>>
>> Should your message necessitate a response, please be sure to
>include
>> your Postal address and telephone number so that I will be able
>to
>> respond to you promptly.
>>
>> Again, thank you for your email message.
>>
>> Sincerely,
>>
>> Arlen Specter
>>
>
>
>
>I received an identical message from Sen. Specter.
>Michel
