 |
 |
Drew 'n Sherry..... (Getting ready to run ...) Hey youse two..... I was at Disneyland the very first week they opened (a LOOONG time ago!) when I was a teenager. I went there at LEAST once a year till my kids were old enough to drive themselves there on their own (and they're now 34 and 30!) <OY! How DID they get that old that fast?!?) <smile> I"ve served my time at Disneyland! I've used enough of those notorious "E Tickets" (before your time, Drew, and possibly Sherry's too) to wallpaper my bedroom with 'em (Yeah SURE, Barbie - like heck you'd put them E-tickets on your BEDROOM walls!) <NOT!> (Well, maybe one or two?) <grin> I digress - - - Sooooo.. you guys have a lovely time at Disneyland, but THIS Angeleno isn't gonna go back to the Magic Kingdom till she takes her grandchildren! (And she doesn't HAVE any of THEM yet, and none are expected that she knows of) <I WISH!!!> Drew - FYI... I got those first vague PD symptoms when I was 32. and have lived with this steeeenkin' disease about 25 years now. There IS "life after Parkinson's," m'friend. Barb Mallut [log in to unmask] -----Original Message----- From: Sherry Macredes <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, October 27, 1999 3:53 PM Subject: Re: HI Drew-Welcome >Hi Drew, >Glad you found us and I think you will be glad you did too. You will find >this list has many young onset people that have gone through the same things >as you. While this is comforting it's also a little scary (I liked your >poem) to know so many young people are fighting this horrible disease. You >will become more informed on PD and what to ask your doctor. I am learning >to be more aggressive with my doctor and it really blows him away when I >throw out some term or medication I learned about on the list. > >My first impression about you was the problem you were having with your >doctor was greater than accepting the PD. You should ask your doctor to >refer you to a neuro who is a movement disorder specialist. These are >wonderful doctors who specialize in things like PD and know all the latest, >well worth the switch to a understanding doctor. I know I had to change dr's >too. > >Don't worry about your sister, family members are usually the last to accept >PD. My husband still thinks I will get better soon! Don't rush them, it's >hard for them too. >Maybe all the California people should get together and go to Disneyland, >can't you just see us now? Well if you can stand in those loooong lines >you're way ahead of me even on a good day!!!! > >Keep writing it good for us, > >Sherry