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Drew, I missed your original post, but I agree with Greg in suggesting that you find a person who specializes in movement Disorders to confirm the diagnosis. Was the diagnosis made when you were taking Haldol? Haldol is a drug that can cause a syndrome that looks like PD but goes away when the drug is removed from the treatment regimen. Were you diagnosed with type I Diabetes incorrectly because that is a lifelong illness? You should also be treated for your depression if it is serious. There is a lot that doesn't fit together here. If your symptoms of PD are seriously interfering with your functioning you should be treated. ----- Original Message ----- From: Gregory J. Sterling <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, October 27, 1999 2:14 PM Subject: Re: HI, I'm Drew > Drew, > > Are you sure you have PD? As far as I know the only way to confirm a > diagnosis of PD is a positive response to a med like sinemet which replaces > dopamine in your system. > > My advice would be to find a good neuro who specializes in movement > disorders and go from there. There is hope. By the time you're 39 they'll > probably have a cure for PD. > > Greg Sterling > 47now/35 dx/12pd > > > -----Original Message----- > From: DisneyFreak <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Wednesday, October 27, 1999 1:36 PM > Subject: HI, I'm Drew > > > >> > > > >Hi, this is one of the hardest but most healthy letters I'll every write. > I > >am 29 and have PD. I'm not on medicine because my doctor doesn't even fill > my > >anti-depressant and I don't want to get sicker then I already am. > > > >My sister is in denial because many of my symptoms were misdiagnosed by > another > >Physician (I once had Fibromiolgia, Diabetes Type 1 and many many more as > >tension and migraine headaches, bad posture, lack of sleep, depression > etc. ) > >Then I went to the hospital and they gave me HALDOL for sleep (Which > seemed to > >kicked it in worse) and I was stiff the next day, hunched with a mask like > >face. 6 months later I still have trouble walking forward without > >walking/falling backward, am hunched slightly, stiff in my my pelvis and > >depression and anxiety, sleep flexed. > > > >And most of all I'm tired of people saying people my age can't get it cos > >we're too young!!! > > > >Guess what, we are not. I went from a computer programmer, Webmaster, > >competitive Figure Skater(ice), student, and Disneyland lover. Now, I can > >barely do any of the above. Actually I can go to Disneyland if I save it > up. > >I live in Southern Calif. Yeah!!!!!! > > > >Drew Devlin > >[log in to unmask] > > > >http://www.maggiescafe.net/ > >http://www.disneyfreak.org > > > >Life's no fun without a good scare... > >This is Halloween, this is Halloween... > >Everyone Scream > >In this town, we call home; > >Everyone hail to the Pumpkin Song. > > > >From: The Nightmare Before Christmas > >Touchstone Pictures