HI MICHAEL--Since our exchange has been onlist, I'll reply here too. Thanks for your explanation of the inability to distribute Ivan's lengthy testimony to Congress, and your recognition of its value. I agree that the efforts made by individual list-members were a good idea, and that such personal efforts are valuable and should be encouraged. Now that Sen. Snowe's office has agreed to pass his testimony along, I 'm sure Ivan feel better about the time and great effort he expended on it. I heard today that the president will veto the bill that contains "our" funding---because the Congress wanted to make cuts (in other areas) he objects to.....so it's back to the drawing board? Michael Claeys wrote in part--- >It was not without some hesitation that I recently called Ivan Suzman to >explain on behalf of the Parkinson’s Action Network that regrettably we >could not send copies of his testimony to the 89 members of the House and >Senate Appropriations Committees. I knew there was a good chance that >select portions of our conversation would wind up on the Listserve, so I >chose my words carefully. Unfortunately, the one word I didn’t have a >choice about was the one word he chose to post: “no.” SNIPPED >At this time, however, with the Congressional calendar drawing to a close >and so many critical advocacy efforts underway, it is beyond the Network’s >staff, time and resource limitations to grant Ivan’s request. SNIPPED > >It has been encouraging to learn of individuals taking it upon themselves to >send copies of Ivan’s testimony to their Senators and Representative. >Perhaps that’s a solution to this situation. Advocates may also want to >follow Ivan’s example by writing your own personal Parkinson’s testimony to >educate and motivate your Congressional representatives. Most Members of >Congress respond best to appeals from their own constituents. >Sincerely, > >Michael Claeys>Policy Coordinator >[log in to unmask] >Parkinson's Action Network >840 3rd Street >Santa Rosa, CA 95404 >(800) 850-4726 - voice >(707) 544-2363 - fax" Camilla Flintermann, CG for Peter 81/70/55 Oxford, Ohio http://www.newcountry.nu/pd/members/camilla/one.htm <[log in to unmask]> "Ask me about the CARE list for Caregivers of Parkinsonians ! "