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Dear Marjorie: As you are one of the few survivors of the Alamo, I salute you! Seriously, your ordeal sounds horrendous and you're lucky to have emerged from it (relatively) intact. Good luck with future surgeries and try to spend as little time as possible in the hospital, as it can be hazardous to your health - especially in these days of "managed care", and the resulting staff cutbacks, etc. Carole H. --- "Marjorie L. Moorefield" <[log in to unmask]> wrote: > At 06:17 PM 10/30/1999 -0400, you wrote: > >In a message dated 10/30/99 12:54:18 PM Central > Daylight Time, > >[log in to unmask] writes: > > > ><< > > > For the last 5 or 6 years I have finally > learned to accept my PD > > > and not go chasing half way around the world > seeking cures. > > > >> > > > >Marjorie, > > > >I think I understand where you are coming from. > Chasing from doctor to > >doctor is not a fun (or probably a wise) thing to > do. However, the thing > >takes no prisoners, it just progresses slowly, > giving the illusion of a > >status quo (which might be accepted). It accepts > no bargains and is > >relentless. Even after you give up almost all > prideful things and accept a > >large degree of disability (with its large degree > of discomfort), things get > >worse. > > > >I too went through the stages where I thought "I > can hack this -if it just > >doesn't get any worse." It always did. So what's > to accept? This is not > >like Viet Nam. We don't have a DEROS and go home > at the end of our tour. As > >things stand now, this is like the Alamo or the > Little BigHorn. Pass the > >ammo, please. > > > > > >WHH 56/38/37 > > > >PS: Happy Birthday! > > > Thanks for the birthday wishes!! > Yes, I know its relentless!!! And I have the scars > to prove it too!! > In 1996 over the Memorial Day Weekend my Sigmoid > Colon ruptured, > to make a long story short, I spent the entire > Summer in a Nursing Home, > and was off work from the library for 6 months. > Then spent 14.5 months > having debriding done, and right now I look as if > I'm 5 months pregnant > with a 3" gash down the center, from stem to > stern!!!! > > I would have liked to had better treatment, so I > wouldn't have to go > through plastic surgery next year when I retire. I > would have liked > for the Doctors, including the poor surgeon who had > to operate on me > in the middle of the night, on his Memorial Day > weekend, to have had > more training with Patients With Parkinson. They > didn't have a clue!!!! > > I want a cure as well as the next PWP, but I also > realize that my next > trip to the Nursing Home probably won't be just for > the Summer. I'd > like to think I'll get better care next time, and > that the Doctors and staff > will, thanks to MJF, at least know the word > --Parkinson's! > > I have already been to the Alamo, and I > survived!!!!!!! > However, the Nursing Home had a back door!!!! > > As Ever, > Marjorie Moorefield, > just another librarian with PD > ===== __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com