Hi Janet,
I first starting having problems in november 1998, mainly depression,
headaches on left
side of head and neck, and tremor in right hand. Seen 3 regular
neurosurgeons from november 98' to may 99'. I received a medicine for benign
tremor, because one neurosurgeon said since the cat scan was normal I didnt
have PD. Well the medicine wasn't working, so they increased the doseage,
still no good. So then I found an excellent Parkinson's / Movement Disorder
Specialist in Dr. Aria Dalvi. He told me I had the classic signs of
parkinson's. My whole right side of my body is slower than my left side, I
have a lot of rigidity in my right side, he could see it in my walk, tremor,
and depression. He put on Amantdine, and then 1 month later, I was better.
I am 31 yrs old, live in Cincinnati Ohio. Dr. Dalvi is with the University
of Cincinnati Medical Center. I had to go back to him recently, due to
tremor back, right leg freezing at times, or it will drag on me. I fell a
couple of times. My balance has gotten worse. So now along with amantadine,
I am on Mirapex also. I am going to a support group this morning especially
for young onset of PD. I will let you know how that goes. I am also seeing
a therapist. She is helping me to learn how to deal with this, since I do
live alone, and also because my parents are going through a divorce after
32yrs. And then my mom is having trouble accepting that I have PD. She
keeps telling me I don't have. But that is another long story.
I seen this listserv as I was browsing the web. I was looking for support
groups that meet at certain times on the internet but can't seem to find
any. Thats all for now. Don't want to be too long winded.
Tina Beyer
janet paterson wrote:
> hi all
>
> At 17:01 1999/10/29 -0400, tina wrote:
> >You guys are real nice and upbeat, but I have to say my own opinion. I
> >was dx in June with PD, and I am a fighter, so it doesn't bother me that
> >much. I realize I will have to make adjustments down the road. The way
> >I see it though, the only thing government and research companies are
> >going to do, is help us live with it. There will not be a cure because
> >the drug companies are making too much money. I mean come on, all the
> >technology we have today, and the last thing we came up with a cure for
> >was Polio. I really think we can have a cure for everything by now, but
> >why when you make all this money off drugs. Hope I didn't offend
> >anyone, just wanted to get that off my chest. Hope everyone had a nice
> >day.
> >
> >Tina from Ohio
>
> hi tina
>
> get ready for the jaNET INTER-rogation!
>
> tell us more about your diagnosis
>
> what kind of doctor/specialist did you see?
> how long had you had symptoms?
> how old are you?
>
> were you given any advice/information about pd?
> or about support groups?
> how did you find us?
>
> did you know that you share a state with the cyber-dad-pd-hero
> of this list?
>
> your new-found cyber-sis
>
> janet
>
> janet paterson
> 52 now / 41 dx / 37 onset
> 613 256 8340 po box 171 almonte ontario canada K0A 1A0
> a new voice: <http://www.geocities.com/SoHo/Village/6263/>
> <[log in to unmask]>
