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I don't understand this. I just posted to W Heitman that I was not the one who said that. I said that we do not go from doctor to doctor looking for a cure for my husbands PD but that it appears to be genetic in his mothers family. So the search should go on- I worry about our descendants and those of his brother. etc.. Nita ( andres2) Marjorie L. Moorefield wrote: > At 06:17 PM 10/30/1999 -0400, you wrote: > >In a message dated 10/30/99 12:54:18 PM Central Daylight Time, > >[log in to unmask] writes: > > > ><< > > > For the last 5 or 6 years I have finally learned to accept my PD > > > and not go chasing half way around the world seeking cures. > > > >> > > > >Marjorie, > > > >I think I understand where you are coming from. Chasing from doctor to > >doctor is not a fun (or probably a wise) thing to do. However, the thing > >takes no prisoners, it just progresses slowly, giving the illusion of a > >status quo (which might be accepted). It accepts no bargains and is > >relentless. Even after you give up almost all prideful things and accept a > >large degree of disability (with its large degree of discomfort), things get > >worse. > > > >I too went through the stages where I thought "I can hack this -if it just > >doesn't get any worse." It always did. So what's to accept? This is not > >like Viet Nam. We don't have a DEROS and go home at the end of our tour. As > >things stand now, this is like the Alamo or the Little BigHorn. Pass the > >ammo, please. > > > > > >WHH 56/38/37 > > > >PS: Happy Birthday! > > Thanks for the birthday wishes!! > Yes, I know its relentless!!! And I have the scars to prove it too!! > In 1996 over the Memorial Day Weekend my Sigmoid Colon ruptured, > to make a long story short, I spent the entire Summer in a Nursing Home, > and was off work from the library for 6 months. Then spent 14.5 months > having debriding done, and right now I look as if I'm 5 months pregnant > with a 3" gash down the center, from stem to stern!!!! > > I would have liked to had better treatment, so I wouldn't have to go > through plastic surgery next year when I retire. I would have liked > for the Doctors, including the poor surgeon who had to operate on me > in the middle of the night, on his Memorial Day weekend, to have had > more training with Patients With Parkinson. They didn't have a clue!!!! > > I want a cure as well as the next PWP, but I also realize that my next > trip to the Nursing Home probably won't be just for the Summer. I'd > like to think I'll get better care next time, and that the Doctors and staff > will, thanks to MJF, at least know the word --Parkinson's! > > I have already been to the Alamo, and I survived!!!!!!! > However, the Nursing Home had a back door!!!! > > As Ever, > Marjorie Moorefield, > just another librarian with PD