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hi all please post replies to the list = archives i will forward janet >From: Anneke Fongers >To: [log in to unmask] >Date: Fri, 5 Nov 1999 12:03:36 +0100 >Subject: question > > To Janet Patterson, >Dear Janet, >Thank you very much for answering my mail. I don't think it is >necessary to subscribe to your list, because I joined already the >Dutch parkinsonlist Nederpark. My choice is to ask the questions >and get the answers through you, if possible. >At first I will tell about my situation: >I am a Dutch female, age 51, living alone after a divorce in 1985, >have two wonderful adult daughters. PD hit me in 1989, it went >slowly at first and since 1996 it got worse with high speed. >Dyskinesia especially in the legs and in the jaws (very frustrating!) >and I couldn't walk without a cane. In October 1997 I got a >pallidotomy at the right side in the head. It was succesful: the >dyskinesia was almost gone. But quite soon the other side got >worse, the same symptoms as the first time. >I got a lot of information about an other surgery: the doublesided >Deep Brain Stimulation of the Sub Thalamic Nucleus. It seemed to >me that would be the appropriate surgery for me: improvement of >the gait, reduce of medication.(I am over-sensitive fot sinemet). >My neurologist told me it would be perfect for me, but impossible >because of the former pallidotomy. After his opinion there is not >enough experience about what can happen after this combination >of surgeries. >But I visited an other specialist (a female neurosurgeon, she >learned a lot from Professor A. Benabid in Grenoble), she told me it >was no problem at all. Now it is up to me to make a choice, a very >difficult choice. >That is the reason why I contacted you. I am looking for people >who underwent at first a pallidotomy and later on a doublesided >stimulation of the STN. What are the results? How did they feel >about it? Did they also feel trapped between opposite advises from >the neurologists? Were there specific problems they had to face? >I will be very pleased to hear the answers. And I am very grateful for >your help! >Yours sincerely, >Anneke Fongers janet paterson 52 now / 41 dx / 37 onset 613 256 8340 po box 171 almonte ontario canada K0A 1A0 a new voice: <http://www.geocities.com/SoHo/Village/6263/> <[log in to unmask]>