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ATTN: Eldon Green. These are reprints of previous postings. -----Original Message----- From: will johnston <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, September 16, 1999 9:57 AM Subject: BRAIN DONATION-PD PEOPLE Dear Listmembers and others with PD or similar brain disease Johns Hopkins University/Hospital needs PD brains for research and study. Johns Hopkins is a recipient of some of the Udall funding, and that will be paying the expense for brain retrieval. The cost to the donor or heirs of the donor will be ZERO. Some pre-planning is needed. The donor has the choice of donating the entire body or brain only. With the brain only, there is no visible damage to the donor which might interfere with an open casket funeral service. Brain removal will be done at Johns Hopkins in Baltimore at no expense to the family if death is within two hours or so from Baltimore. When death occurs more than two hours from Baltimore, Johns Hopkins will arrange for the removal at some medical facility in that area, all at Johns Hopkins expense. I have agreed to make this donation myself, but hope that actual donation will take place in the near future. The decision to donate body parts at death must be pre-planned by the donor and family. For more information and forms, contact me and I will put you in contact with the proper people at Hopkins. Will Johnnston A.P.D.A. DelMarVA Chapter Pres. 4049 Oakland School Road Salisbury MD 21804 USA 410-543-0110 ========ALSO========== I just called Lillian from the NPF/ University of Miami Brain Bank and asked her about the expenses associated with donating a brain for research. She told me that the only time the family of the person donating a brain would incur expenses would be for illnesses, such as Huntington's and others in which the brain bank does not receive support from any organization. In the case of Parkinson's disease, the National Parkinson Foundation pays for all of the costs for the donated brain. Please call the NPF/UM Brain Bank at 1-800-862-7246 and ask for an "Inquiry Packet". As you all know, doing research on brains with Parkinson's as well as "healthy" brains (those not having PD) as a comparison brain, is essential in finding a cure. Sincerely, Bonnie Cunningham NPF