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Oh Joy!  Oh Wondrous Joy!   Today my hand-free
speech amplifier was delivered and lo and behold, j
just like magic, I CAN BE HEARD *NORMALLY once
again!! (Mopping up tears by the bucket with a BIG
smile on face...)

Personal PD-voice History:    After approximately
22 years (now over 25 years)  living  with Parkinson's
and a successful unilateral pallidotomy in Oct.
of '94,  three year ago began to notice that everyone
around me was getting hard of hearing. (Ok... ok.... be
honest , now, Barbie) Well let's say about 3 year ago
I noticed wherever I went and whoever I was with at
the time had a terrible time HEARING me.

And it wasn't THEM that had the problem - it was ME.
Whenever I spoke, folks were saying "What?
WHAT??? I can't HEAR you."  What was even worse,
SOME people, in an effort not to embarrass me, just
sat there without a CLUE as to what I was talking about,
and never ever commented that they couldn't hear me,
until _ I _ happened to notice the blank look on their
respective and collective faces.

Lack of ability to COMMUNICATE, when I had SO much
to say, began to frustrate me, and I became desperate.

In an effort to be heard, I had speech therapy at Kaiser
Permanente, my HMO, and realized by the second
lesson, the therapist knew little about PD and
PD-related speech problems.

Next I went to UCLA's famed Throat and Neck Clinic,
headed by Dr. Gerald Berke, who injected collagen
into both vocal cords and successfully restored my
speaking voice for about 5 months, and $500 (which
IS picked up by Medicare, unless you, like me had
assigned your Medicare to an HMO, in which case
you're out of pocket is you want this procedure
performed on your vocal cords immediately.

FYI.... Even if I was willing to pop more money in five
hundred dollar chunks every 3 to 6 months indefinitely,
which I'm not economically able to do (I'd prolly have to
cut out FOOD from my daily regimen!), that would make
no difference because my body began to absorb injected
 collagen within hours of getting the injections.

Sooooo.... NEXT I tried the Lee Silverman Voice Therapy,
and found myself totally HOARSE within minutes if shouting
into voice decipal counter, while being coached by a
friend who'd completed the Silverman  course.   While
she can and did instruct me, HER voice could barely be
heard because like so many who've paid $1600 for a
Silverman-method therapist she eventually stopped the
mandatory daily exercises with the voice decipal counter,
and her voice returned to it's whispery self.

In desperation (and I was becoming VERY desperate!),
I began searching for companies who either made or
sold VOICE AMPLIFIERS.  Eventually, I found three
companies,  two of whom produced two different types
of voice amplifiers in that they each had a "cheapie"
unit selling around $159.95, and a more expensive unit,
at about $650.   The only difference in the two was clarity,
and a bit of a size difference,  The third company made a
unit that is absolutely crystal clear and filters out ALL noise
extraneous but the voice of the person wearing the unit.
This l'il wonder is about the size of a cigarette box, and
the OTHERS are a bit more "chunky" looking - more boxy.
And IT'S a cool $6000 (that's right, six THOUSAND dollars!)
I figured, that tho the units SHOULD be covered by Medicare,
since my Medicare-paid HMO, Kaiser, would first put me
thru a round of in-house referrals  - to assorted voice
therapists, throat specialists, and goodess only-know-what,
I began to accept the idea that I'd somehow personally
absorb the cost of the cheapest unit ($159), and not go thru
Medicare, after months of dancing around the sacred halls
of Kaiser till I FINALLY, if ever, received a prescription for
a voice amplifier.

Last week I ordered the "BRUCE Hands Free Voice
Amplifier," which arrived today. And it WORKS!!!!!

Initially there was a "shriek," which I soon learned
meant the little machine didn't like me holding it in
my HAND (which might be why the unit is called the
"Hands Free Speech Amplifier, huh?"  DUH!)
<giggle>  while I was speaking into it.

 No biggee.... I hooked it over my belt like a pager or
cell-phone, since it comes with a somewhat ungainly
hook for that purpose.  Again, o biggee... I can make
a variety of cute and/or colorful holders to house the unit.

FYI.... I got the feeling from reading the super-thin
operating instructions (Reading something like
"Plug-in and talk') <grin>, that it was a really big
"battery eater," so plan to stock up with a 50 year
supply of 9-volt batteries (the unit uses one at a time,
and I have no idea how long a single battery will last.
Be advised tho, that I *DO* like to talk, and have a LOT
of talkin' to make up for! <smile>

You can order a flyer for general information on the
Hands Free Speech Amplifier or order the unit itself by
 contacting the following:

BRUCE Medical Supply
411 Waverly Oaks Road, Suite 154
Waltham, Massachusetts 02454
(800) 225-8446

(Barb grabs Scooter-cat and begins to happily dance
'round her wee 8x8 foot office singing in  NORMAl voice
for a change! (uhhhhhh..... Scooter has a VERY startled
look on her cute little cat face at her "mom's"
shenanigans! <giggle>

I've put everything I can think of about the speech
amplifier and assorted speech/vocal cord treatments
and/or therapies I've tried in the last few years, but if
someone has any questions 'bout what I've said here,
please feel free to email me at  [log in to unmask]

I *WILL* respond, but please keep in mind that I'm
 moving this coming Thursday, so my replies might be on
 the brief side, 'cause there's still lotsa packing to do.

Barb (YIPPEE!  I can TALK!!) Mallut
[log in to unmask]