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Hi janet: I love the way you are SO reluctant to speak your mind. Your 2 cents worth is more like $2.00 worth. I especially like the part about SOME doctors not noticing (some of my best friends, etc.) that they weren't gods anymore. But I would, being a nurse. Carole H. --- janet paterson <[log in to unmask]> wrote: > hi all > > At 21:21 1999/11/08 -0500, tina wrote: > >I am looking for any info on Mirapex side effects....The > only > >side effect I can find is about falling asleep. I am > having > >bad joint pain in my knees. Just started saturday, and > I started > >my full dose of Mirapex friday (1.5mg)day. I am also on > Amantadine > >(generic for Symmetrel). Still having tremors and > balance problems, > >so far Mirapex really hasnt helped me. I already have a > call > >into my doctor, waiting for return call. Just trying to > get more > >info before I see the doctor. He will not put me on > sinemet because > >he says I am too young. He said the longer you take it, > the worse > >side effects you get down the road. He said he only > gives it to > >his older patients. My symptoms are tremor in right > hand, and > >head...balance problems, fallen 5 times in past 2 weeks, > joint > >pain in knees, right leg dragging and freezing (which > has caused > >most of falls), depression, fatigue, and trouble walking > any > >distance. I am only 31 yrs old. Any info would be > greatly > >appreciated. My doctor is really good, he and his team > of doctors > >are third in the nation in pallidomy surgeries. I > really am just > >looking for ideas or thoughts to bring up to my doctor > when I go > >see him. Thanks, and sorry for being so winded. > >Tina-----Fairfield, Ohio > > tina > > sinemet was a miracle for me > i started it in 1988 when i was diagnosed > > i had 'ignored' my walking problems for so long > that my diagnosing doctor said that my symptoms were > incapacitating > [i was having difficulty walking, typing and writing] > and that justified putting me on sinemet immediately > which resulted in my symptoms virtually disappearing for > years > > the dopamine agonists generally are good for treating > early symptoms > for a relatively short time > > good sinemet management is the key to long useability, > IMHO > > 11 years later > i now have "on" and "off" times > when my symptoms are under control and when they are not, > so sinemet doseage and timing becomes a fine art > and require close attention and patience > but that's a small price to pay for the benefits > [again, in my humble opinion] > > personally > i think your doctor has an insensitive if not sadistic > attitude > toward you and your symptoms > [speaks of 'soldiering on' and 'pull yourself up by your > bootstraps'] > > are you still working? > why not ask him what he would do if he were in your > shoes? > > if you have clinical depression > it is eminently treatable and curable and should be > addressed > i know it well and it is not something to be treated > lightly > > also a couple more two cents > surgery is the option of last resort for pd symptoms > > being skilled in same does not necessarily automatically > guarantee skill or sensitivity in med management > > how many young onset patients does your doctor have? > > to quote one of my heroes > the era of 'doctor as god' is over, maybe he hasn't > noticed? > > janet > getting on another rant > > janet paterson > 52 now / 41 dx / 37 onset > e-mail - [log in to unmask] > web-site - http://www.geocities.com/SoHo/Village/6263/ > ===== __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com