Hi Susan: One more piece of information. Just came home
from a symposium given for health care professionals given
by Yale's Movement Disorders Clinic (New Haven,CT) and THEY
say they are still researching pros and cons re: Sinemet
for early onset PD, and will take no position either way.
Carole H.
--- Susan Trout <[log in to unmask]> wrote:
> HEY!! Desist with the cat calls. I have early onset PD;
> was dx 2 years ago.
> I attended a conference where I heard a Burrows Institute
> physician tell an
> auditorium full of PWP and professionals that this
> ongoing squabble of Early
> Senemet Usage Vs Non-early Senemet Usage is the product
> (and I'll add the
> progeny, offspring, child, and an apparent evil child at
> that) of two of the
> leading PD researchers and their camps. They present
> materials at a
> reoccurring national symposium, presentations just about
> in alternating
> years. It appears the two researchers despise each other
> so much that they,
> and their camps of followers, seem to spend more time
> trying to tear down
> each other's position on Senemet usage than time spent
> trying to help PWP.
> Imagine what could be done for US is THEY stopped
> squabbling. Stop harassing
> each other here and GO AFTER THE RESEARCHERS to do the
> work they claim they
> want to do; find a cure for PD. Just Imagine the
> benefits We would have if
> They redirected their energies by Getting Over Their
> Hate; their jealousy
> is theft, robbery, it is the Case of the Purloined PD
> Cure. Go to the
> sources of this division; tell them "Enough already,
> Cease the Meowing, get
> to work on a cure."
>
> charlotte wrote:
>
> Humor? Read it again please; it doesn't sound like humor
> to me, and I love
> to laugh.
> ---------------------
> Hi janet: I love the way you are SO reluctant to speak
> your mind. Your 2
> cents worth is more like $2.00 worth. [snip]... Carole H.
> -----------------------------------
> hi carole
> i can't help it when i see what i consider arrogance or
> ignorance affecting
> someone's health i see red [snip]...
> Charlotte
> ------------------------------------
> With all due respect, what's good for you and indeed many
> others is not
> necessaryily the ONLY answer for everyone. There should
> not be the Sinemet
> school doing battle with the delaying Sinemet school.
> There is more than
> one way to skin PD. Please, may we have a less black and
> white discussion?
> Charlotte
> -----------------------------------
> Brian Collins wrote:
> I am in full agreement with Janet on the subject of
> delaying
> Sinemet...Witholding Sinemet in early PD is stupid, and
> it doesn't work. Of
> course proving that it doesn't work is virtually
> impossible...
>
> **************************************************
> For advocacy, medical, and other PD-related material, go
> to:
> http://www.onelist.com/subscribe/CurePD-NorCal
>
=====
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