hi all At 21:39 1999/11/10 -0700, you wrote: >Janet, what's the Mars Mambo Express with Bern...sounds exciting. >I used to love to dance...(one of the saddest things for me, >losing my sense of rythym--I can feel the beat, but I can't >keep time to it.) but maybe by then I'll be able to dance again? hi brenda once i started on sinemet the stiffness and rigidity which had prevented me from tapping my foot to music disappeared that is still the case now during my 'on' times if i am 'off' i am virtually immobile when my meds are 'kicking in' i transform from a frozen statue to a 'normal' walking talking dancing human in a matter of minutes i would think that sinemet would give you the same benefit i don't think it affects one's 'sense of rhythm'...? here's some background to the mars mambo silliness: janet -------------------------------------- Date: Tue, 31 Aug 1999 10:23:47 -0700 From: J. R. Bruman <[log in to unmask]> Subj: Re: LIST: Restrict Your Incoming ListMail by Topic -------------------------------------- janet paterson wrote: > Hi all; > I have activated a Topics feature in our LISTSERV > software. It's a topical heatwave! Everybody mambo!! Joe -------------------------------------- Date: Fri, 03 Sep 1999 02:56:19 -0400 From: janet paterson Subj: NONPD: a pome -------------------------------------- estrangement a strange meant a making strange a losing touch a shutting out a shutting in shut the door close it off end it put a stop to it make it final no more all out of fear intolerance out of fear jealousy out of fear anger out of fear fear out of fear fear of hurting fear of losing fear of giving fear of taking fear of needing fear of wanting fear of loving 1999/09/01 -------------------------------------- Date: Fri, 3 Sep 1999 10:57:52 +0200 From: Bernard Shaw Subj: Re: NONPD: a pome -------------------------------------- Dear Janet, Your poem got to me, are you feeling depressive today or are you generally having a bad time.? I have a saying which goes like this. If your face wants to smile, Let it. If it doesn't, Make it. Easy for me to write but I honestly try to smile no matter how I feel. The world is for most Parkinson patients one big up and down, mainly downs when I am to be honest. I hope that I have made a mistake about your Poem and that you feel on top of the world. Bern. -------------------------------------- Date: Fri, 03 Sep 1999 09:59:56 -0400 From: janet paterson Subj: Re: NONPD: a pome -------------------------------------- hi all At 10:57 1999/09/03 +0200, bern wrote: >Your poem got to me, are you feeling depressive today >or are you generally having a bad time.?... neither! that 'pome' was some musing on thoughts and observations which had been percolating in my head for awhile i will take your reaction as one of the nicest compliments about my writing that i've ever had! >I have a saying which goes like this. >If your face wants to smile, Let it. If it doesn't, Make it... sort of like an old song about whistling "whenever i feel afraid...." >Easy for me to write but I honestly try to smile >no matter how I feel. The world is for most Parkinson >patients one big up and down, mainly downs when I am >to be honest... i think it's important that we 'allow' ourselves to feel lousy when we feel lousy it was also important to me to realize that i could actively make a conscious choice in how i looked at ... everything! >I hope that I have made a mistake about your Poem >and that you feel on top of the world. Bern. >http://members.teleweb.at/bernard.shaw/poetry.html i don't know if i would call it a 'mistake' if my words grabbed your heart and did a little twisting there maybe it's a case of my words having the 'power' to grab maybe it's a case of your heart being open and 'twistable' janet -------------------------------------- Date: Fri, 3 Sep 1999 16:23:53 +0200 From: Bernard Shaw Subj: Re: NONPD: a pome -------------------------------------- Janet I am so pleased that you are alright. Your poem did touch me but then nowadays so much touches me that I did not consciously see before Parkinon's. A piece of music .a child that is in distress, a poverty stricken person anywhere in the world. My heart goes out to them. Is it possibly all this Sinamet.? Does it cause our brains to react differently or is it Old Age creeping up.? I tell everone that I meet, I will live to be a hundred, Parkinson or no Parkinson. I want to see the civilisation jump in the next thirty years. Perhaps I too will be able to go to Mars or even the Moon. I have alwayss been an optimist so perhaps I will reach the 100 mark. Bern -------------------------------------- Date: Sat, 04 Sep 1999 08:29:45 -0400 From: janet paterson Subj: Re: NONPD: a pome -------------------------------------- hi all At 16:23 1999/09/03 +0200, bern wrote: >... Is it possibly all this Sinamet.? Does it cause our >brains to react differently or is it Old Age creeping up.? ... Our brain chemistry is an amazing micro-internet all on its own. I think that there is a great deal more to pd than its physical symptoms. There is a definite link with clinical depression; dopamine is associated with addiction, euphoria, has been named 'the feel good' neurotransmitter. [funny - Dr. Burns' book on cd is called 'Feeling Good'] One of the secondary symptoms of pd is 'a tendency to tears'. Since tears are a physical manifestation of strong emotion, I tend to think that this symptom description is a tad limited. I would venture a guess that pd changes our brain chemistry in a way that makes us more vulnerable and open to emotions; brings them all up closer to the surface. And I am starting to think that this emotionality is something separate from simply a reaction [anger, denial, etc.] to our pd diagnosis and the ongoing daily realities of our 'affliction' >I tell everone that I meet, I will live to be a hundred, Parkinson >or no Parkinson. I want to see the civilisation jump in the next >thirty years. Perhaps I too will be able to go to Mars or even the >Moon. I have alwayss been an optimist so perhaps I will reach the >100 mark. if i've done my arithmetic right when i join you on board the Mars-Mambo-Express i will only be 82! janet -------------------------------------- Date: Sat, 4 Sep 1999 15:19:24 +0200 From: Bernard Shaw Subj: Re: NONPD: a pome -------------------------------------- Well Janet I hope they allow young ones to travel with out an accompanying adult or we will both have to stay here on Earth and let the others go in our place. (:-) )lol bern -------------------------------------- janet paterson 52 now / 41 dx / 37 onset e-mail - [log in to unmask] web-site - http://www.geocities.com/SoHo/Village/6263/