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Continuity challenges of Parkinson's disease in middle life.

This interpretive study explored the experience of having Parkinson's
disease (PD) in middle life. The researcher examined how persons with PD (N
= 16) coped with challenges to their sense of self and a future of limited
horizons. Participants were ages 42-59 years (mean age = 48 years) and had
been diagnosed for a range of 1-16 years. In-depth interviews, focusing on
day to day experiences, coping episodes and future hopes and concerns, were
conducted on 3 occasions. Findings indicated that participants maintained an
intact identity by sustaining a sense of continuity with their
pre-Parkinson's self. They dealt with the progressive nature of their
illness of by keeping open a range of possibilities for the future. This
study advances understanding of the challenges experienced by those with PD
and suggests ways in which nurses may be able to be more effective in
supporting individuals who are living with this disease.

J Neurosci Nurs 1999 Aug;31(4):200-7
Habermann B
University of Washington, Seattle, Washington 98195-7262, USA.
PMID: 10553567, UI: 20021141

<http://www.ncbi.nlm.nih.gov/PubMed/>

janet paterson
52 now / 41 dx / 37 onset
e-mail - [log in to unmask]
web-site -  http://www.geocities.com/SoHo/Village/6263/