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I am beginning to wonder...... I have been taking sinemet for 17 years now, The past couple of years, the dyskinesia has been increasing, but amantadine seems to be keeping that at bay. The past few months, a new pattern is developing - as the dysinesia increases in my upper body, so the tightness increases in my feet, and begins to creep up my calves, then my knees, not necessarily equal in both legs. Is this dystonia, or just a reaction to the upper body dyskinesia? If the former, does it mean t he sinemet is no longer as effective against it Or that it has become so exaggerated that the sinemet is no longer enough for it (subtle but definite difference) Or is the prolonged exposure to sinemet causing it? Does anybody have any answers? hilary blue JaneRoss wrote: > > Greetings, > > I just have to throw in my two cents, you can put them in the Penny jar. I > have distonia that is unaffected by the use of Sinemet. It came with my > DBS STN surgery. It only affects the toes of my left foot but it never > goes away. Even though I no longer take Sinemet I have been through a > Sinemet drug study to know it doesn't help. > > Must be time for another study. > > >hi all > > > >joe and brian's cybersation in re dystonia got me mulling > >so i went browsing > >and now i stand back agape and in awe again > >at the miracles of both the internet and our human bodies > > > >janet > > > > > >Dystonia Dialogue > ><http://www.dystonia-foundation.org/> > >Dystonia Medical Research Foundation > >One East Wacker Drive Chicago, IL USA 60601-1905 > >Tel: (312) 755-0198 or (800) 377-DYST Fax: (312) 803-0138 > >E-Mail: <[log in to unmask]> > > > >Bachmann Strauss Dystonia & Parkinson Foundation > ><http://www.dystonia-parkinsons.org/> > >THE MOUNT SINAI MEDICAL CENTER > >One Gustave L. Levy Place / Box 1490 New York, NY 10029 > >Tel (212) 241-5614 Fax (212) 987-0662 > ><E-mail: [log in to unmask]> > > > >Dystonia On-Line Support Group > ><http://www.dystonia-support.com/> > > > >ps > >all i did to find these sites was go to > >google [my favourite search engine] at: > ><http://www.google.com/> > >and > >type in "dystonia definition" > >easy as pie > > > >janet paterson > >52 now / 41 dx / 37 onset > >e-mail - [log in to unmask] > >web-site - http://www.geocities.com/SoHo/Village/6263/ > > jjjane > http://www.geocities.com/soho/village/6263/pienet/hithgang/hitjaner.html